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Customer Review Ratings
Average of 7 Customer Reviews
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Review fromHerb F
Date: 11/27/2024
1 starHerb F
Date: 11/27/2024
You wanted people with a diagnosis of pulmonary fibrosis. That is my diagnoses . Why did you cut my pre interview short? You ask if I have ppf or pdf something like that. I don't know all I know is I have been on 24/7 oxygen since Nov of 2021.
Rare Patient Voice, LLC
Date: 12/03/2024
Our clients specify the recruiting criteria. The client was looking for patients with idiopathic pulmonary fibrosis (IPF) or progressive pulmonary fibrosis (PPF). You responded "I don't know" to the type of PF, so they weren't able to accept you in their study. We've contacted you to let you know, if you can confirm which type of pulmonary fibrosis you have with your doctor, the client may be able to include you in their study.Review fromAngela C
Date: 06/27/2024
5 starsI've had a mostly positive experience with Rare Patient Voices. After trying to get selected for campaigns due to their high research payout, I was delighted when I finally got picked. Though I experienced an issue when my case payment via check was repeatedly declined by ******, ********, I applaud the swift and helpful response from Rare Patient Voices upon emailing them about my predicament. Their effort in trying to resolve the problem was commendable.Review fromKaya W
Date: 04/17/2023
5 starsKaya W
Date: 04/17/2023
Love this research company. Has been very helpful in making money to assist with the bills! I haven't really had an issue in receiving the incentives promised to me, but the one time I did have a discrepancy in the promised incentive the service team was extremely prompt in contacting the researchers and fixing the error. This is a company that stands by their patients. It's on my list of the best study websites with monetary incentives, and it makes me sad to hear there are people claiming it's a scam. I can understand some of the complaints about never getting qualified for anything and never receiving studies. I have quite a few diagnosed chronic diseases, however the only studies I manage to get are those for the more rarer diseases. Most research currently being done at the time does not solely focus on psychological diseases, so getting a study that's looking for those with depression, anxiety, ADHD, etc., is a bit unlikely. All in all, honest and responsible company, good incentives for the work required in studies, and a website that is very easy to navigate. Thank you, Rare Patient Voice!Rare Patient Voice, LLC
Date: 04/18/2023
Thanks so much for your positive review. We aim to please all patients and caregivers.Review fromTdj J
Date: 03/20/2023
1 starTdj J
Date: 03/20/2023
This is a scam. You end up providing very sensitive, personal information, but then never qualify for surveys. Do not sign up with this scam.Rare Patient Voice, LLC
Date: 03/23/2023
Thanks for trying to participate. Not everyone qualifies for every study, our clients determine the qualification criteria. But we are not a scam! We've paid patients and caregivers over $10 million since our founding 10 years ago. Patients rate us 9.4. out of 10 on their overall experience. When you don't qualify, please ask the project manager - often they will be able to tell you why. And when you don't qualify, your data is not used.Review fromMayen H
Date: 08/15/2022
5 starsMayen H
Date: 08/15/2022
Truly valid company. I have been doing surveys for over 2 years.Rare Patient Voice, LLC
Date: 08/17/2022
Thanks for taking part and for sharing your opinion!Review fromJama R.
Date: 08/02/2022
5 starsJama R.
Date: 08/02/2022
Great information and staff (Chantel, Kirk, and Emily) are fantastic! Highly, HIGHLY RECOMMEND!Rare Patient Voice, LLC
Date: 08/05/2022
We're glad you had a great experience!Review fromTerry F
Date: 07/25/2022
5 starsTerry F
Date: 07/25/2022
I have use them for years now. As I am on disability, this really helps with making a little extra money. They have always been great and reliable. Any problems.. they fix it. Any questions, they have you. I definitely recommend. 100 times over!!Rare Patient Voice, LLC
Date: 07/28/2022
Thanks so much for the positive comment! We hope all our patients and caregivers have the same great experience!
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