Charity Review

Issued: February 2017 Expires: February 2019

THANC (Thyroid, Head And Neck Cancer) Foundation

Standards Not Met
 
(212) 844-6832 10 Union Sqare East Suite 5B, New York NY 10003 thancfoundation.org
  1. Conclusions
  2. Purpose
  3. Programs
  4. Governance & Staff
  5. Fund Raising
  6. Tax Status
  7. Financial
Conclusions

THANC (Thyroid, Head And Neck Cancer) Foundation does not meet the following 3 Standards for Charity Accountability.

Standard 6: Effectiveness Policy - Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.

THANC (Thyroid, Head And Neck Cancer) Foundation does not meet this standard because:

The charity's Board of Directors has not approved a policy stating that the charity's performance and effectiveness will be assessed at least once every two years.

Standard 7: Effectiveness Report - Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.

THANC (Thyroid, Head And Neck Cancer) Foundation does not meet this standard because:

In the materials submitted to the BBB, it was indicated that the organization has not completed a performance assessment, and does not have one planned to take place in the next two years.

Standard 17: Website Disclosures - Include on any charity websites that solicit contributions, the same information that is recommended for annual reports, as well as the mailing address of the charity and electronic access to its most recent IRS Form 990.

THANC (Thyroid, Head And Neck Cancer) Foundation does not meet this standard because:

Although the charity solicits for contribution on its website, http://thancfoundation.org, the charity does not provide a summary of the past year’s program service accomplishments, total income for the past fiscal year, total program expenses, total fundraising expenses, total administrative expenses and total end-of-year net assets for the past fiscal year on its website and the charity does not provide access to its most recent IRS Form 990 on its website. 

Purpose

We are committed to supporting research and education in the early detection and treatment of thyroid and head and neck cancer, to advancing new therapies, and to alleviating the suffering and functional impairment of patients who undergo treatment.

Incorporated: 2003

Programs

The THANC Foundation, in conjunction with Beth Israel Medical Centers Institute for Head, Neck and Thyroid Cancer, brings together a dedicated team made up of the foremost experts treating and preventing head, neck and thyroid cancers. This team helps patients and their families to navigate through the most effective and technologically advanced and comfortable cancer evaluation research and treatments available. The Head and Neck Research Program is part of an international research network, which studies the impact of various treatments, including surgery, radiation, chemotherapy and prosthetic rehabilitation on patient function and quality of life. The Research Program assess outcomes with statistical significance to guide the future patient care in head and neck and thyroid cancer. The purpose of the Thyroid Research Program is to attack thyroid cancer on multiple levels focusing on the prevention of the disease, understanding the increased incidence of thyroid cancer in women, understanding tumor behavior, developing new strategies for treating iodine resistant diseases, and treating thyroid cancer that are less differentiated. The Program strategizes around developing a multi-institutional database that has the capability of implementing a tracking instrument for patients and their likelihood of achieving statistical significance through increased numbers. The Thyroid Research Program includes laboratory research and testing on clinical samples from patients to further the understanding of the mechanisms of thyroid cancer. The Thyroid, Head and Neck Research Center (THNRC) has been established to carry out thyroid, head and neck cancer research. The program employs a Research Director who is a senior level speech and swallowing therapist who oversees all research which is conducted within the center. The Research Center focuses its efforts on several different areas which include the head and neck research network, The Thyroid Cancer Care Collaborative and the Head and Neck Cancer Guide. The TCCC is a tool to record and monitor individual patient records. Through a variety of unique features, the TCCC enhances the quality of thyroid cancer care that can be offered to each individual. Experts in the field of Otolaryngology, Endocrinology, Endocrine Surgery, Medical Oncology, Radiation Oncology, Diagnostic Radiology and Nuclear Medicine have been instrumental in developing the software and have played a major role in creating the vast library of patient education videos which are certain to save time for providers, while providing a more effective means of educating patients about their disease. The TCCC provides portable information for patients and clinicians regarding thyroid cancer care. Our vision is to advance the quality of care of thyroid nodules and thyroid cancer to its highest level through the development of an internet based system for recording and accumulating information about each patient in a HIPPA compliant manner. Our goal is to provide the most comprehensive and personalized treatment to patients over the course of their lifetime. Enhanced connectivity between the clinicians involved in the care of a patient is an extremely important part of the system design, as well as providing portability of information for patients and a tool to connect data to facilitate clinical research. Making real time data available to all care providers will result in enhanced decision making regarding treatment and strategies for surveillance. Clinical decision making modules have been developed by experts using the American Thyroid Association and the National Comprehensive Cancer Network clinical practice guidelines. Time saving measures for clinicians are also incorporated in the system, including an extensive library of, highly illustrated educational videos on all aspects of the management of thyroid nodules and thyroid cancer. The HNCG is an informational website designed to provide support for patients and their loved ones on their journey with head and neck cancer. The website includes over 2,000 pages of expertly written text in an age-appropriate manner for adults, teens and children. Also featured on the site are interactive games, survivor videos, and informative articles on cancer types, treatments, care options and the emotional journey one travels from the moment of diagnosis.

Governance & Staff

CEO: Erika Markowitz, Executive Director Compensation:* $175,000

Board Chair: David Hirsh

Board Size: 21

Staff: 10

* Compensation includes annual salary and, if applicable, benefit plans, expense accounts and other allowances.
Fund Raising
Method(s) used: Direct Mail Appeals Invitations to Fundraising Events Internet Appeals

% of Related Contributions on Fundraising: 14.45%

Tax Status

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

Financial

The following information is based on THANC (Thyroid, Head And Neck Cancer) Foundation Audited Financial Statements for the fiscal year ending Thursday, December 31, 2015.

Source of Funds
Contribution $1,375,128
Special events $695,587
Investment income $4,350
Other income $759
Total Income: $2,075,824
 
Fusion Chart
 
Program Expenses: $1,912,564
Fundraising Expenses: $299,140
Administrative Expenses: $328,436
Total Expenses: $2,540,140
 
Income in Excess of Expenses: ($464,316)
 
Beginning Net Assets: $3,952,955
Ending Net Assets: $3,488,639
Total Liabilities: $514,370
Total Assets: $4,003,009


An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

Standards Legend

  • Meets Standards IconMeets Standards
  • Standards Not Met IconStandards Not Met
  • Did Not Disclose IconDid Not Disclose
  • Review in Progress IconReview in Progress
  • Unable to Verify IconUnable to Verify
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Standard 1: Board Oversight


Description:

Organizations shall have a board of directors that provides adequate oversight of the charity's operations and its staff. Indication of adequate oversight includes, but is not limited to, regularly scheduled appraisals of the CEO's performance, evidence of disbursement controls such as board approval of the budget, fund raising practices, establishment of a conflict of interest policy, and establishment of accounting procedures sufficient to safeguard charity finances.

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Standard 2: Board Size


Description:

Soliciting organizations shall have a board of directors with a minimum of five voting members.

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Standard 3: Board Meetings


Description:

An organization shall have a minimum of three evenly spaced meetings per year of the full governing body with a majority in attendance, with face-to-face participation. A conference call of the full board can substitute for one of the three meetings of the governing body. For all meetings, alternative modes of participation are acceptable for those with physical disabilities.

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Standard 4: Board Compensation


Description:

Not more than one or 10% (whichever is greater) directly or indirectly compensated person(s) serving as voting member(s) of the board. Compensated members shall not serve as the board's chair or treasurer.

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Standard 5: Conflict of Interest


Description:

No transaction(s) in which any board or staff members have material conflicting interests with the charity resulting from any relationship or business affiliation. Factors that will be considered when concluding whether or not a related party transaction constitutes a conflict of interest and if such a conflict is material, include, but are not limited to: any arm's length procedures established by the charity; the size of the transaction relative to like expenses of the charity; whether the interested party participated in the board vote on the transaction; if competitive bids were sought and whether the transaction is one-time, recurring or ongoing.

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Standard 6: Effectiveness Policy


Description:

Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.

THANC (Thyroid, Head And Neck Cancer) Foundation does not meet meet this standard because:

The charity's Board of Directors has not approved a policy stating that the charity's performance and effectiveness will be assessed at least once every two years.

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Standard 7: Effectiveness Report


Description:

Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.

THANC (Thyroid, Head And Neck Cancer) Foundation does not meet meet this standard because:

In the materials submitted to the BBB, it was indicated that the organization has not completed a performance assessment, and does not have one planned to take place in the next two years.

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Standard 8: Program Expenses


Description:

Spend at least 65% of its total expenses on program activities.

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Standard 9: Fund Raising Expenses


Description:

Spending should be no more than 35% of related contributions on fund raising. Related contributions include donations, legacies, and other gifts received as a result of fund raising efforts.

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Standard 10: Accumulating Funds


Description:

Avoid accumulating funds that could be used for current program activities. To meet this standard, the charity's unrestricted net assets available for use should not be more than three times the size of the past year's expenses or three times the size of the current year's budget, whichever is higher.

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Standard 11: Audit Report


Description:

Make available to all, on request, complete annual financial statements prepared in accordance with generally accepted accounting principles. When total annual gross income exceeds $500,000, these statements should be audited in accordance with generally accepted auditing standards. For charities whose annual gross income is less than $500,000, a review by a certified public accountant is sufficient to meet this standard. For charities whose annual gross income is less than $250,000, an internally produced, complete financial statement is sufficient to meet this standard.

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Standard 12: Detailed Expense Breakdown


Description:

Include in the financial statements a breakdown of expenses (e.g., salaries, travel, postage, etc.) that shows what portion of these expenses was allocated to program, fund raising, and administrative activities. If the charity has more than one major program category, the schedule should provide a breakdown for each category.

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Standard 13: Accurate Expense Reporting


Description:

Accurately report the charity's expenses, including any joint cost allocations, in its financial statements. For example, audited or unaudited statements which inaccurately claim zero fund raising expenses or otherwise understate the amount a charity spends on fund raising, and/or overstate the amount it spends on programs will not meet this standard.

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Standard 14: Budget Plan


Description:

Have a board-approved annual budget for its current fiscal year, outlining projected expenses for major program activities, fund raising, and administration.

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Standard 15: Truthful Materials


Description:

Have solicitations and informational materials, distributed by any means, that are accurate, truthful and not misleading, both in whole and in part. Appeals that omit a clear description of program(s) for which contributions are sought will not meet this standard. A charity should also be able to substantiate that the timing and nature of its expenditures are in accordance with what is stated, expressed, or implied in the charity's solicitations.

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Standard 16: Annual Report


Description:

Have an annual report available to all, on request, that includes: (a) the organization's mission statement, (b) a summary of the past year's program service accomplishments, (c) a roster of the officers and members of the board of directors, (d) financial information that includes (i) total income in the past fiscal year, (ii) expenses in the same program, fund raising and administrative categories as in the financial statements, and (iii) ending net assets.

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Standard 17: Website Disclosures


Description:

Include on any charity websites that solicit contributions, the same information that is recommended for annual reports, as well as the mailing address of the charity and electronic access to its most recent IRS Form 990.

THANC (Thyroid, Head And Neck Cancer) Foundation does not meet meet this standard because:

Although the charity solicits for contribution on its website, http://thancfoundation.org, the charity does not provide a summary of the past year’s program service accomplishments, total income for the past fiscal year, total program expenses, total fundraising expenses, total administrative expenses and total end-of-year net assets for the past fiscal year on its website and the charity does not provide access to its most recent IRS Form 990 on its website. 

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Standard 18: Donor Privacy


Description:

Address privacy concerns of donors by (a) providing in written appeals, at least annually, a means (e.g., such as a check off box) for both new and continuing donors to inform the charity if they do not want their name and address shared outside the organization, (b) providing a clear, prominent and easily accessible privacy policy on any of its websites that tells visitors (i) what information, if any, is being collected about them by the charity and how this information will be used, (ii) how to contact the charity to review personal information collected and request corrections, (iii) how to inform the charity (e.g., a check off box) that the visitor does not wish his/her personal information to be shared outside the organization, and (iv) what security measures the charity has in place to protect personal information.

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Standard 19: Cause Marketing Disclosures


Description:

Clearly disclose how the charity benefits from the sale of products or services (i.e., cause-related marketing) that state or imply that a charity will benefit from a consumer sale or transaction. Such promotions should disclose, at the point of solicitation: (a) the actual or anticipated portion of the purchase price that will benefit the charity (e.g., 5 cents will be contributed to abc charity for every xyz company product sold), (b) the duration of the campaign (e.g., the month of October), (c) any maximum or guaranteed minimum contribution amount (e.g., up to a maximum of $200,000).

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Standard 20: Complaints


Description:

Respond promptly to and act on complaints brought to its attention by the BBB Wise Giving Alliance and/or local Better Business Bureaus about fund raising practices, privacy policy violations and/or other issues.