Better Business Bureau Report for
International Essential Tremor Foundation

Better Business Bureau Report issued January 2018
Better Business Bureau Report expires January 2020

This BBB Accredited charity meets all 20 Standards for Charity Accountability. Find out more...

Find out more about this charity:

Back To Top

Charity Contact Information

Name: International Essential Tremor Foundation
Address: 11111 W. 95th Street Ste 260
Phone: 913-341-3880
Web Address:
Also known as:
Back To Top

Better Business Bureau Comments

Formerly known as:

Year, State Incorporated: 1988, IL
Affiliates: None
Stated Purpose: The International Essential Tremor Foundation provides hope to the essential tremor (ET) community worldwide through awareness, education, support, and research.

Back To Top

Evaluation Conclusions


International Essential Tremor Foundation meets the 20 Standards for Charity Accountability.
Back To Top



The IETF's principal service activities are as follows: 1. Expand awareness with patients to allow them to become advocates to doctors and the medical community 2. Educate both the community members and those unaware of ET 3. Increase the IETF’s involvement in research for treatments and a cure for ET

For the fiscal year ended March 31, 2017, International Essential Tremor Foundation's program expenses were:

Program 470,174
Total Program Expenses: $470,174
Back To Top



Chief Executive : Patrick McCartney, Executive Director

Chair of the Board: Kelly Lyons
Chair's Profession / Business Affiliation: Director of Research Parkinson's Disease and Movement Disorder Center, University of Kansas Medical Center

Board Size: 6

Paid Staff Size: 3

*Compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Back To Top

Fund Raising


Method(s) Used:

direct mail, telephone, grant proposals, internet
Fund raising costs were 4% of related contributions. (Related contributions, which totaled $859,244, are donations received as a result of fund raising activities.)
Back To Top

Tax Status


This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
Back To Top



The following information is based on International Essential Tremor Foundation's audited financial statements for the fiscal year ended March 31, 2017.

Source of Funds  
Memorials & Bequests 368,323
Annual donations 363,749
Special events 68,503
Research 53,899
Grants 50,000
Investment income 35,213
Other revenues 13,817
Contributions 4,770
Total Income $958,274


Uses of Funds as a % of Total Expenses

Programs: 79%  Fund Raising: 6%  Administrative: 15% 

Total income $958,274
Program expenses $470,174
Fund raising expenses 36,535
Administrative expenses 86,377
Total expenses $593,086
Income in Excess of Expenses 365,188
Beginning net assets 1,961,912
Ending net assets 2,327,100
Total liabilities 18,236
Total assets $2,345,336

Back To Top

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

Send to:

What is an Accredited Charity