Better Business Bureau Report for
Down Syndrome Association of Greater St. Louis

Better Business Bureau Report issued June 2011
Better Business Bureau Report expires June 2012

This BBB Accredited charity meets all 20 Standards for Charity Accountability and is a Seal Holder. Find out more...

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Charity Contact Information

Name: Down Syndrome Association of Greater St. Louis
Address: 8420 Delmar Blvd. Suite 200
  Saint Louis, MO 63124
Phone: 314-961-2504
Web Address:
Also known as:DSAGSL
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Better Business Bureau Comments

Formerly known as:St. Louis Down Syndrome Association

Year, State Incorporated: 1977, Missouri
Affiliates: None
Stated Purpose: “exists to benefit the lives of people with Down syndrome and their families through individual and family supports, education, public awareness, and advocacy. It envisions a community where all people with Down syndrome can achieve their full potential."

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Evaluation Conclusions


Down Syndrome Association of Greater St. Louis (DSAGSL) meets the 20 Standards for Charity Accountability.
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The Down Syndrome Association of Greater St. Louis (DSA)has a New Parent Support program, which can begin as early as a pre-natal diagnosis. It provides support and a one-on-one mentor to new parents. Books and pamphlets are available. All services are provided at the parent’s request. The DSA also provides support through the Down Syndrome Center at St. Louis Children’s Hospital. The Medical Outreach program provides information and educational speakers to OB/GYN offices across the St. Louis area and medical students. There are also four Educational Specialist Training workshops each year, which trains educators on how to best educate children with Down syndrome; and multiple educational Conferences are conducted annually to help parents and educators with key issues. Every year, a one-week bike camp is offered, called “Lose the Training Wheels” during which children with Down syndrome learn how to ride without the extra support of training wheels. There are also Community Groups located through the metropolitan St. Louis area where parents can benefit from the support of others who have children with Down syndrome. The DSA has a Family Picnic for members, as well as a Holiday Party. We have a bi-weekly E-Blast that lists what is going on at DSA and other nonprofits serving individuals with Down syndrome. It has a semi-annual newsletter and is on Facebook.

For the fiscal year ended June 30, 2010, DSAGSL's program expenses were:

Program services 336,298
Total Program Expenses: $336,298
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Chief Executive : Diane Schuch, Executive Director

Chair of the Board: Tim Monroe
Chair's Profession / Business Affiliation: Account Manager, Digital Management Solutions

Board Size: 19

Paid Staff Size: 5

*Compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising


Method(s) Used:

direct mail, invitations to fund raising events, print advertisements, television, internet
Fund raising costs were 22% of related contributions. (Related contributions, which totaled $393,308, are donations received as a result of fund raising activities.)
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Tax Status


This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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The following information is based on DSAGSL's audited financial statements for the fiscal year ended June 30, 2010.

Source of Funds  
Fundraising income 300,652
Non-cash contributions 29,418
Contributions 29,117
Memorials 13,038
Program income 12,537
Conference 11,267
Grant income 9,816
Merchandise 7,826
Other income 2,687
Interest income 884
Total Income $417,242


Uses of Funds as a % of Total Expenses

Programs: 66%  Fund Raising: 17%  Administrative: 17% 

Total income $417,242
Program expenses $336,298
Fund raising expenses 87,082
Administrative expenses 89,196
Total expenses $512,576
Expenses in Excess of Income (95,334)
Beginning net assets 215,154
Ending net assets 119,820
Total liabilities 18,929
Total assets $138,749

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