BBB Wise Giving Report for
Osteogenesis Imperfecta Foundation

BBB Wise Giving Report issued August 2010
BBB Wise Giving Report expires August 2012


This BBB Accredited charity meets all 20 Standards for Charity Accountability. Find out more...


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Charity Contact Information

Name: Osteogenesis Imperfecta Foundation
Address: 804 West Diamond Avenue, Suite 210
  Gaithersburg, MD 20878
Phone: 301-947-0083
800-981-2663
Web Address: www.oif.org
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BBB Wise Giving Alliance Comments

Year, State Incorporated: 1970, Georgia
Affiliates: None
Stated Purpose: "to improve the quality of life for people with osteogenesis imperfecta through research, education, awareness and support."

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Evaluation Conclusions

               

Osteogenesis Imperfecta Foundation (OIF) meets the 20 Standards for Charity Accountability.
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Programs

               

OIF began funding a long-term project to develop linked clinical research centers in order to improve the quality of care and increase research relevant to OI. Included in the project is an OI Registry to improve knowledge of the natural history of OI. OIF also funds research fellowships and seed grants to find cures and treatments for osteogenesis imperfecta. The organization provides an interactive website to provide information on all aspects of living with OI and the opportunity to join an online community. OIF reports that, on average, over 18,000 people use the website each month and that staff and volunteers respond to more than 6,000 direct inquires a year. The organization sponsors 32 support groups across the United States.

For the fiscal year ended June 30, 2009, OIF's program expenses were:

  
Research 1,036,353
Education & support 286,208
Conferences 233,146
Public awarness 58,839
Total Program Expenses: $1,614,546
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Governance

               

Chief Executive : Tracy Smith Hart, Chief Executive Officer
Compensation*:
 $135,020

Chair of the Board: Sharon Trahan
Chair's Profession / Business Affiliation: Fusion Living

Board Size: 14

Paid Staff Size: 10

*July 1, 2008 - June 30, 2009 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

               

Method(s) Used:

Direct mail, telemarketing, special events, grant proposals, Internet appeals, cause-related marketing, and membership appeals.
Fund raising costs were 16% of related contributions. (Related contributions, which totaled $1,885,919, are donations received as a result of fund raising activities.)
OIF incurred joint costs of $55,467 for informational materials and activities that included fund raising materials. Of those costs, $52,693 was allocated to program expenses and $2,774 was allocated to fund raising expenses.
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Tax Status

               

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

               

The following information is based on OIF's audited financial statements for the fiscal year ended June 30, 2009.

Source of Funds  
Contributions and grants 1,063,070
Event revenue 646,157
Direct mail 156,300
Conference 87,958
In-kind contributions 20,392
Product sales (net) 7,480
Invesment (loss) -111,216
Total Income $1,870,141


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Uses of Funds as a % of Total Expenses

Programs: 79%  Fund Raising: 15%  Administrative: 6% 

Total income   $1,870,141
  Program expenses $1,614,546
  Fund raising expenses 298,034
  Administrative expenses 126,312
 
Total expenses   $2,038,892
Expenses in Excess of Income   (168,751)
Beginning net assets   2,252,006
Ending net assets   2,083,255
Total liabilities   658,917
Total assets   $2,742,172


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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

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