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Tax Status Governance Fund Raising Financial

Name:	National Down Syndrome Society
Address:	666 Broadway, 8th Floor
	New York, NY 10012
Phone:	800-221-4602 212-460-9330
Web Address:	www.ndss.org

National Down Syndrome Society (NDSS) meets the 20 Standards for Charity Accountability.

Throughout the year, NDSS produces and disseminates educational materials, including print materials, educational videos and books. Print materials include more than 40 different brochures and resource lists in English and Spanish. NDSS also publishes "Update," a quarterly newsletter featuring information about topics specific to Down Syndrome and NDSS, and "Upbeat," a magazine written by and for teens and adults with Down Syndrome. NDSS supports regional, national, and international conferences on issues from infancy to adulthood in Down Syndrome, including research, education, health care, employment, housing, and social issues. NDSS advocates on behalf of individuals with Down Syndrome and their families on legislative issues. The NDSS policy team provides grassroots and legislative advocacy training for parents, individuals with Down Syndrome and others through training programs, conference workshops, an online advocacy center, and email advocacy alerts.

For the fiscal year ended March 31, 2006, NDSS's program expenses were:

Education	646,329
National conference	456,352
Public awareness	414,861
Advocacy	403,086
Research	363,110
Affiliates	147,851
Website	133,172
Update	90,918
Upbeat	60,854
Katrina relief	38,889
Total Program Expenses:	$2,755,422

Chief Executive : Jonathan Colman, Chief Operating Officer

Compensation*:

$115,000

Chair of the Board: Pamela van der Lee
Chair's Profession / Business Affiliation: Former Vice President

Co-Chair of the Board : Stephen Riggio

Chair's Profession / Business Affiliation: CEO

Co-Chair of the Board : William Halle

Chair's Profession / Business Affiliation: Attorney

Board Size: 22

Paid Staff Size: 11

*April 1, 2005 - March 31, 2006 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:

Direct mail, special events, radio, grant proposals, Internet appeals, planned giving, cause-related marketing, and membership appeals.

Fund raising costs were 15% of related contributions. (Related contributions, which totaled $2,837,082, are donations received as a result of fund raising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on NDSS's audited financial statements for the fiscal year ended March 31, 2006.

Source of Funds
Special events (net)	1,316,457
Contributions	1,238,773
In-kind contributions	281,852
Conference income	180,290
Investment income	148,421
Booklets, films and educational materials	54,809
Rental income	23,679
Total Income	$3,244,281

Uses of Funds as a % of Total Expenses

Programs: 76%  Fund Raising: 12%  Administrative: 12%

Total income				$3,244,281
	Program expenses			$2,755,422
	Fund raising expenses			420,905
	Administrative expenses			453,970
Total expenses				$3,630,297
Expenses in Excess of Income				(386,016)
Beginning net assets				3,029,185
Ending net assets				2,643,169
Total liabilities				185,918
Total assets				$2,829,087

Note 1: According to NDSS, the organization received $281,852.38 in in-kind donations including the following: items for gift bags at special events ($122,006.82), miscellaneous ($50,592.39), auction goods ($45,766) auction services ($42,724), food and beverages for special events ($11,218.17), video production ($7,000.00) and programs for events ($2,545.00).