BBB Wise Giving Report for
Spina Bifida Association of America

BBB Wise Giving Report issued February 2012
BBB Wise Giving Report expires May 2012


This BBB Accredited charity meets all 20 Standards for Charity Accountability. Find out more...


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Charity Contact Information

Name: Spina Bifida Association of America
Address: 4590 MacArthur Boulevard, NW
Suite 250
  Washington, DC 20007
Phone: 202-944-3285
800-621-3141
Web Address: www.sbaa.org
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BBB Wise Giving Alliance Comments

Year, State Incorporated: 1973, Wisconsin
Affiliates: 46 chapters and the Spina Bifida Association of America Foundation
Stated Purpose: "to promote the prevention of Spina Bifida and to enhance the lives of all affected."

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Evaluation Conclusions

               

Spina Bifida Association of America (SBAA) meets the 20 Standards for Charity Accountability.
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Programs

               

SBAA serves adults and children who live with Spina Bifida. Its outreach programs include listservs, a mentoring program, a national conference, a national camp for children with Spina Bifida and a scholarship fund for those with the disease. SBAA’s Awareness Campaign is a yearlong effort to increase the public's understanding of Spina Bifida and its prevention. The organization funds research into the disease’s cause, effects and treatment and encourages the training of professionals involved in treating Spina Bifida. The National Resource Center on Spina Bifida provides confidential information and referral services.

For the nine month period ended December 31, 2006, SBAA's program expenses were:

  
Education 1,265,050
Member services/chapter development 453,256
Government relations 153,873
Information and referral 141,747
Research 141,022
Total Program Expenses: $2,154,948
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Governance

               

Chief Executive : Cindy Brownstein, Chief Executive Officer
Compensation*:
 $191,206

Chair of the Board: N. Joyce Jones
Chair's Profession / Business Affiliation: Retired

Board Size: 14

Paid Staff Size: 12

*2006 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances. Cindy Brownstein also recieved $57,912 as compensation from the organization's affiliate, Spina Bifida Association of America Foundation.
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Fund Raising

               

Method(s) Used:

Direct mail, special events, print and radio advertisements, grant proposals, Internet appeals, planned giving, cause-related marketing, and membership appeals
Fund raising costs were 10% of related contributions. (Related contributions, which totaled $2,599,736, are donations received as a result of fund raising activities.)
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Tax Status

               

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

               

The following information is based on SBAA's audited financial statements for the nine month period ended December 31, 2006.

Source of Funds  
Grants 1,474,276
Contributions 448,597
Special events (net) 424,935
Conferences and meetings 323,498
Raffle 116,400
Federated fundraising organizations 77,095
Membership dues 66,424
Sales of materials and services 37,246
Contributed services and materials 30,129
Bequests 28,304
Investment income 12,483
Other 8,678
Total Income $3,048,065


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Uses of Funds as a % of Total Expenses

Programs: 85%  Fund Raising: 10%  Administrative: 5% 

Total income   $3,048,065
  Program expenses $2,154,948
  Fund raising expenses 268,663
  Administrative expenses 140,504
 
Total expenses   $2,564,115
Income in Excess of Expenses   483,950
Beginning net assets   1,402,939
Ending net assets   1,886,889
Total liabilities   110,899
Total assets   $1,997,788

Note: In 2006, SBAA received $30,129 in donated travel services.

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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

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