BBB Wise Giving Report for
Parent Project for Muscular Dystrophy Research

BBB Wise Giving Report issued April 2010
BBB Wise Giving Report expires April 2012


This BBB Accredited charity meets all 20 Standards for Charity Accountability and is a Seal Holder. Find out more...


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Charity Contact Information

Name: Parent Project for Muscular Dystrophy Research
Address: 1052 North University Blvd
  Middletown, OH 45042
Phone: 513-424-0696
800-714-5437
Web Address: www.parentprojectmd.org
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BBB Wise Giving Alliance Comments

Formerly known as:Duchenne Parent Project

Year, State Incorporated: 1994, Ohio
Affiliates: None
Stated Purpose: "to improve the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, education, advocacy and compassion."

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Evaluation Conclusions

               

Parent Project for Muscular Dystrophy Research (PPMD) meets the 20 Standards for Charity Accountability.
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Programs

               

PPMD identifies, funds, and disseminates information about promising Duchenne and Becker muscular dystrophy research. PPMD also seeks to ensure that all families, caregivers, and health care professionals have access to information about treatment and care options for children with Duchenne and Becker muscular dystrophy. PPMD holds an annual conference on Duchenne and Becker muscular dystrophy and also publishes newsletters to benefit the Duchenne Muscular Dystrophy community. PPMD also holds annual legislative conferences in Washington, DC, to advocate for legislation that specifically addresses childhood muscular dystrophies. PPMD also collaborates with international organizations that address Duchenne and Becker Muscular Dystrophy by building connections between doctors and scientists around the world to ensure that significant research and care discoveries are shared quickly.

For the year ended December 31, 2008, PPMD's program expenses were:

  
Education 1,773,457
Research 1,487,208
Advocacy 372,385
Total Program Expenses: $3,633,050
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Governance

               

Chief Executive : Patricia A. Furlong, President & CEO
Compensation*:
 $148,597

Chair of the Board: John Killian
Chair's Profession / Business Affiliation: Senior Vice President/CFO of ING Real Estate Investment Management

Board Size: 9

Paid Staff Size: 13

*2008 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

               

Method(s) Used:

Direct mail, special events, print advertisements, television, radio, grant proposals, Internet appeals, and cause-related marketing.
Fund raising costs were 7% of related contributions. (Related contributions, which totaled $3,858,392, are donations received as a result of fund raising activities.)
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Tax Status

               

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

               

The following information is based on PPMD's audited financial statements for the year ended December 31, 2008.

Source of Funds  
Special events (net) 2,087,505
Grants and contributions 1,770,887
Program revenue 60,209
Interest and dividend income 3,136
Investment loss -1,615
Total Income $3,920,122


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Uses of Funds as a % of Total Expenses

Programs: 84%  Fund Raising: 6%  Administrative: 10% 

Total income   $3,920,122
  Program expenses $3,633,050
  Fund raising expenses 278,298
  Administrative expenses 449,032
 
Total expenses   $4,360,380
Expenses in Excess of Income   (440,258)
Beginning net assets   540,141
Ending net assets   99,883
Total liabilities   629,307
Total assets   $729,190


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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

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