BBB Wise Giving Report for
National Fragile X Foundation

BBB Wise Giving Report issued January 2011
BBB Wise Giving Report expires January 2013


This BBB Accredited charity meets all 20 Standards for Charity Accountability. Find out more...


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Charity Contact Information

Name: National Fragile X Foundation
Address: 1615 Bonanza Street, #202
  Walnut Creek, CA 94596
Phone: 800-688-8765
925-938-9300
Web Address: www.FragileX.org
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BBB Wise Giving Alliance Comments

Year, State Incorporated: 1984, Colorado
Affiliates: Centers in San Diego, Southern California, Missouri, Michigan, New York, Ohio, Georgia, Virginia, and Washington, Families for Fragile X, and 27 chapters
Stated Purpose: "to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X."

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Evaluation Conclusions

               

National Fragile X Foundation (NFXF) meets the 20 Standards for Charity Accountability.
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Programs

               

NFXF supplies free information, referrals and support through its website, monthly and quarterly email newsletters, and quarterly print journal for families and professionals. The organization also funds clinical and scientific research, organizes a bi-annual international conference for families and professionals, and works with a network of 37 parent support groups in the US. In 2006, the Fragile X Clinical and Research Consortium was established, which aims to provide state of the art clinical and medical treatment for all Americans (with a current focus on the inclusion of underserved populations), and establish a structure for collaborative research efforts, including drug trials for new and promising treatments.

For the year ended December 31, 2009, NFXF's program expenses were:

  
Programs and activities 1,112,026
Total Program Expenses: $1,112,026
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Governance

               

Chief Executive : Robert Miller, Executive Director
Compensation*:
 $97,000

Chair of the Board: Michael Kelley
Chair's Profession / Business Affiliation: Owner, Ruddy Duck Brewery and Grill

Board Size: 15

Paid Staff Size: 9

*2009 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

               

Method(s) Used:

Direct mail, special events, grant proposals, Internet appeals, and membership appeals.
Fund raising costs were 15% of related contributions. (Related contributions, which totaled $1,186,334, are donations received as a result of fund raising activities.)
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Tax Status

               

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

               

The following information is based on NFXF's audited financial statements for the year ended December 31, 2009.

Source of Funds  
Individual contributions 610,971
Special events 528,688
Program projects 236,720
Conferences and other contributions 103,210
Memberships 27,580
Corporate/foundation contributions 19,095
Other 10,151
Educational sales 5,396
Realized investment gains 877
Interest and dividends 766
Total Income $1,543,454


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Uses of Funds as a % of Total Expenses

Programs: 79%  Fund Raising: 12%  Administrative: 9% 

Total income   $1,543,454
  Program expenses $1,112,026
  Fund raising expenses 175,945
  Administrative expenses 126,752
 
Total expenses   $1,414,723
Income in Excess of Expenses   128,731
Beginning net assets   231,343
Ending net assets   360,074
Total liabilities   255,572
Total assets   $615,646


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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

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