BBB Wise Giving Report for
Children's Tumor Foundation

BBB Wise Giving Report issued October 2007
BBB Wise Giving Report expires October 2009


This BBB Accredited charity meets all 20 Standards for Charity Accountability and is a Seal Holder. Find out more...


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Charity Contact Information

Name: Children's Tumor Foundation
Address: 95 Pine Street
16th Floor
  New York, NY 10005
Phone: 212-344-6633
Web Address: www.ctf.org
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BBB Wise Giving Alliance Comments

Year, State Incorporated: 1978, New York
Affiliates: 32 chapters

Stated Purpose: "to encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (hereafter collectively referred to as "NF"); support persons with NF, their families and caregivers by providing thorough, accurate, current and readily accessible information; assist in the development of clinical centers, best practices and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population’s understanding of the challenges facing persons with NF, and encourage financial and other forms of support from public and private sources."

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Evaluation Conclusions

               

Children's Tumor Foundation (CTF) meets the 20 Standards for Charity Accountability.
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Programs

               

CTF extends grants to scientists just starting out in their careers for studies into the causes of and treatments for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (referred to from this point on as "NF"). CTF also sponsors an annual meeting that features presentations by investigators in the field and experts in related disciplines. Its Clinical and NF Mutation Databases serve as central repositories for information about NF and are accessible by Internet to scientists and clinicians. For kids with NF, CTF hosts a summer camp where they are able to develop friendships and have an outlet for discussing questions and collective concerns. Support groups and other programs are coordinated by CTF chapters and affiliates. In addition to its newsletters, CTF also produces several guides and brochures for patients and their familes on NF topics.

For the year ended December 31, 2006, CTF's program expenses were:

  
Research and medical programs 2,373,112
Public education and patient support services 930,542
Total Program Expenses: $3,303,654
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Governance

               

Chief Executive : John W. Risner, President and Executive Director
Compensation*:
 $122,600

Highest Paid Executive: Kim Hunter-Schaedle, PhD, Chief Scientific Officer
Compensation*: $141,750

Chair of the Board: Suzanne Earle
Chair's Profession / Business Affiliation: Principal, Earle & Associates, Real Estate

Co-Chair of the Board : Nate Walker

Chair's Profession / Business Affiliation: President, Investors Management Company, Inc.

Board Size: 19

Paid Staff Size: 22

*2006 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

               

Method(s) Used:

Direct mail, special events, grant proposals, Internet appeals, cause-related marketing, and membership appeals.
Fund raising costs were 15% of related contributions. (Related contributions, which totaled $4,366,596, are donations received as a result of fund raising activities.)
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Tax Status

               

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

               

The following information is based on CTF's audited financial statements for the year ended December 31, 2006:

Source of Funds  
Contributions 2,500,146
Special events, net 1,156,805
Corporations and foundations 447,435
Unrealized gains on investments 181,225
Gifts-in-kind 130,320
United Way and CHC 119,806
Interest and dividends 90,984
Gains on sale of assets 11,029
Membership 6,050
Other income 6,034
Total Income $4,649,834


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Uses of Funds as a % of Total Expenses

Programs: 76%  Fund Raising: 15%  Administrative: 9% 

Total income   $4,649,834
  Program expenses $3,303,654
  Fund raising expenses 644,323
  Administrative expenses 381,075
 
Total expenses   $4,329,052
Income in Excess of Expenses   320,782
Beginning net assets   2,936,348
Ending net assets   3,257,130
Total liabilities   630,097
Total assets   $3,887,227


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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

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