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Charity Contact Information BBB Wise Giving Alliance Comments Programs

Tax Status Governance Fund Raising Financial

Name:	Amyotrophic Lateral Sclerosis Association
Address:	1275 K Street NW, Suite 1050
	Washington, DC 20005
Phone:	202-407-8584 800-782-4747
Web Address:	www.alsa.org
Also known as: ALS Association

Amyotrophic Lateral Sclerosis Association (ALSA) meets the 20 Standards for Charity Accountability.

ALSA awards grants to physicians and scientists at universities, hospitals, and other institutions to determine the cause, find a cure, and develop treatments for ALS. ALSA also holds workshops on topics related to ALS to bring researchers and investigators together to exchange information on progress in research and treatment methodologies. Fact sheets distributed by ALSA address issues such as minimizing fatigue, nursing care, slurring of speech, breathing difficulties, and feeding tubes and nutrition. ALSA offers information on the ailment, coping, managing symptoms to maximize function, and aspects to consider in making the complex decisions involved with the disease designed for people living with ALS and their families. The organization is also involved in advocacy efforts and it provides information relating to ALS though literature and its website.

For the fiscal year ended January 31, 2010, ALSA's program expenses were:

Research grants	4,471,709
Patient and community services	3,766,537
Public and professional education	1,982,730
Total Program Expenses:	$10,220,976

Chief Executive : Jane H. Gilbert, President and Chief Executive Officer

Compensation*:

$210,397

Chair of the Board: Jay Daugherty, J.D.
Chair's Profession / Business Affiliation: Attorney/Mediator

Board Size: 24

Paid Staff Size: 52

*February 1, 2009 - January 31, 2010 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:

Direct mail, special events, grant proposals, Internet appeals, planned giving, and cause-related marketing.

Fund raising costs were 26% of related contributions. (Related contributions, which totaled $8,350,518, are donations received as a result of fund raising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on ALSA's audited financial statements for the fiscal year ended January 31, 2010.

Source of Funds
Chapters	6,257,424
Contributions	4,553,281
Bequest	3,014,662
Events	586,744
Realized/unrealized gain on marketable securities	472,259
Federated campaigns	195,831
Change in value of split-interest agreements	92,985
Interest income	77,526
Other income	76,976
Gain on beneficial interest in perpetual trusts	16,456
Total Income	$15,344,144

Uses of Funds as a % of Total Expenses

Programs: 75%  Fund Raising: 16%  Administrative: 9%

Total income				$15,344,144
	Program expenses			$10,220,976
	Fund raising expenses			2,209,779
	Administrative expenses			1,296,230
Total expenses				$13,726,985
Income in Excess of Expenses				1,617,159
Beginning net assets				7,901,051
Ending net assets				9,518,210
Total liabilities				5,715,985
Total assets				$15,234,195