Better Business Bureau

Charity Contact Information BBB Wise Giving Alliance Comments Programs

Tax Status Governance Fund Raising Financial

Name:	Alliance for Lupus Research
Address:	28 West 44th Street, Suite 501
	New York, NY 10036
Phone:	212-218-2840 800-867-1743
Web Address:	www.lupusresearch.org

Alliance for Lupus Research (ALR) meets the 20Standards for Charity Accountability.

ALR operates medical research programs and it has reportedly supported research that has led to the development of 9 therapeutic agents out of approximately a dozen currently in the clinical pipeline. In 2005, ALR launched a consortium of lupus researchers, the International SLE Genetics (SLEGEN) Consortium, to find the genes responsible for lupus. ALR also encourages cross-sector and cross-discipline partnerships to foster an innovative research environment by funding collaborative meetings where researchers are encouraged to exchange ideas. In addition, ALR has a public policy program with the intent to increase federal funding for lupus research. The main goals of this ALR program are to educate members of Congress and the Administration about the importance of funding lupus research, to increase federal funding for lupus research, and to secure additional funding for lupus research through key federal agencies.

For the year ended December 31, 2007, ALR's program expenses were:

Research	8,575,439
Scientific programs	1,059,342
Public policy	623,754
Total Program Expenses:	$10,258,535

Chief Executive : Barbara Boyts, President

Compensation*:

$279,411

Chair of the Board: Robert W. Johnson IV
Chair's Profession / Business Affiliation: Chairman and CEO, The Johnson Company and the New York Jets, LLC

Board Size: 9

Paid Staff Size: 34

*2007 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:

Direct mail, special events, grant proposals, Internet appeals, planned giving, and door to door appeals

Fund raising costs were 21% of related contributions. (Related contributions, which totaled $9,984,546, are donations received as a result of fund raising activities.)

ALR incurred joint costs of $274,332 for informational materials and activities that included fund raising materials. Of those costs, $219,466 was allocated to fund raising expenses and $54,866 was allocated to program expenses.

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on ALR's audited financial statements for the year ended December 31, 2007:

Source of Funds
Contributions	4,458,336
Walkathon income, net	2,815,818
Contributions and donated land and property	1,575,000
Special events income, net	1,135,392
Interest income	551,252
Rental income, net	237,589
Realized and unrealized loss on investments	-42,571
Total Income	$10,730,816

Uses of Funds as a % of Total Expenses

Programs: 77%  Fund Raising: 15%  Administrative: 8%

Total income				$10,730,816
	Program expenses			$10,258,535
	Fund raising expenses			2,082,059
	Administrative expenses			1,147,224
Total expenses				$13,487,818
Expenses in Excess of Income				(2,757,002)
Beginning net assets				12,103,026
Ending net assets				9,346,024
Total liabilities				7,913,019
Total assets				$17,259,043

Note 1: According to ALR's audited financial statements for the year ended December 31, 2007, the organization received $1,175,000 in in-kind donations which represents a donation of residential real property.