BBB Wise Giving Report for
Tuberous Sclerosis Alliance

BBB Wise Giving Report issued May 2011
BBB Wise Giving Report expires May 2013


This BBB Accredited charity meets all 20 Standards for Charity Accountability. Find out more...


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Charity Contact Information

Name: Tuberous Sclerosis Alliance
Address: 801 Roeder Road, Suite 750
  Silver Spring, MD 20910
Phone: 301-562-9890
Web Address: www.tsalliance.org
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BBB Wise Giving Alliance Comments

Formerly known as:National Tuberous Sclerosis Association

Year, State Incorporated: 1975, California
Affiliates: Tuberous Sclerosis Alliance Endowment Fund
Stated Purpose: "to find a cure for tuberous sclerosis complex while improving the lives of the affected."

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Evaluation Conclusions

               

Tuberous Sclerosis Alliance (TS Alliance) meets the 20 Standards for Charity Accountability.
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Programs

               

NTSA works to provide information, access to resources and a place for hope for those affected by TSC through the stimulation and sponsorship of research; the development of programs, support services and resource information; and the development and implementation of public and professional education programs designed to heighten awareness of TSC. NTSA also funds basic, translational and clinical research. Beyond funding and promoting basic and clinical research, the NTSA offers individual and family support through a network of nation-wide volunteer branches called Community Alliances and provides increased knowledge about the disease via public and professional education programs.

For the fiscal year ended June 30, 2010, TS Alliance's program expenses were:

  
Research 1,425,738
Family services 384,849
Public health education 189,302
Government relations 152,958
Professional education 11,778
Total Program Expenses: $2,164,625
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Governance

               

Chief Executive : Kari Luther Rosbeck, President and CEO
Compensation*:
 $152,511

Chair of the Board: Celia Mastbaum
Chair's Profession / Business Affiliation: Consultant

Board Size: 29

Paid Staff Size: 13

*July 1, 2009 - June 30, 2010 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

               

Method(s) Used:

Direct mail, telemarketing, special events, print advertisements, grant proposals, Internet appeals, door to door appeals, planned giving, and membership appeals.
Fund raising costs were 18% of related contributions. (Related contributions, which totaled $2,948,844, are donations received as a result of fund raising activities.)
NTSA incurred joint costs of $74,470 for informational materials and activities that included fund raising materials. Of those costs, $37,235 was allocated to program expenses, and $37,235 was allocated to fund raising expenses.
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Tax Status

               

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

               

The following information is based on NTSA's consolidated audited financial statements for the fiscal year ended June 30, 2010.

Source of Funds  
Special events, net 1,585,820
Contributions 1,167,706
Net gain on investments 208,670
Interest and dividends 108,880
Memorials and honorariums 103,971
Federated funding 91,347
Conference 56,970
Other income 3,967
Total Income $3,327,331


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Uses of Funds as a % of Total Expenses

Programs: 68%  Fund Raising: 16%  Administrative: 16% 

Total income   $3,327,331
  Program expenses $2,164,625
  Fund raising expenses 517,486
  Administrative expenses 520,765
 
Total expenses   $3,202,876
Income in Excess of Expenses   124,455
Beginning net assets   7,275,704
Ending net assets   7,400,159
Total liabilities   178,665
Total assets   $7,578,824

Note: According to NTSA's audited financial statements for the year ended June 30, 2010, the organization received in-kind contributions in the amount of $20,610 including: investment fees ($13,120), event raffle items ($6,928), and event fees ($562).

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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

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