Better Business Bureau

Charity Contact Information BBB Wise Giving Alliance Comments Programs

Tax Status Governance Fund Raising Financial

Name:	Pulmonary Hypertension Association
Address:	801 Roeder Road, Suite 400
	Silver Spring, MD 20910
Phone:	301-565-3004
Web Address:	www.PHAssociation.org

Pulmonary Hypertension Association (PHA) meets the 20Standards for Charity Accountability.

PHA hosts support groups throughout the U.S. as well as a patient-to-patient telephone helpline to provide support to those with pulmonary hypertension (PH). The organization’s advocacy efforts include the PH Research Act and the 435 Campaign, which seeks to pair patients with their elected representatives. PHA publishes “Advances in Pulmonary Hypertension,” a medical journal dedicated to PH, mailed quarterly to all cardiologists, pulmonologists and rheumatologists in the U.S., as well as to physicians abroad; “The Patient’s Survival Guide,” a 295-page, patient-written and medically reviewed guide to living with pulmonary hypertension, available in English, Spanish, Japanese, and Chinese; and various print and electronic publications, including two member newsletters, a Diagnosis CD-ROM, and other medical education DVDs. PHA’s International Program acts as a communication hub for PH associations throughout the world, collecting and disseminating best practices and fostering peer-to-peer training via a leader listserv. PHA also provides direct funding for research through three peer-reviewed research grant programs, in partnership with other research institutions. PHA has also begun to provide medical education to patients, families, caregivers and medical professionals through a four-pronged Medical Education Program.

For the year ended December 31, 2007, PHA's program expenses were:

Medical services	1,045,630
Research	526,165
Patient support services	395,746
Advocacy and awareness	325,511
PH resource network	318,875
Journal	262,891
Internet and print services	157,419
International	93,867
Merchandise	91,642
Scientific leadership council	82,322
PH clinicians and researchers	82,025
Membership	67,868
Board	66,583
Conference	65,651
Corporate committee	32,212
Volunteer services	5,090
Total Program Expenses:	$3,619,497

Chief Executive : Rino Aldrighetti, President & CEO

Compensation*:

$164,719

Chair of the Board: Colonel Carl Hicks Jr., Retired
Chair's Profession / Business Affiliation: COO/Deputy Postmaster General, Earth Class Mail

Board Size: 20

Paid Staff Size: 30

*2007 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:

Direct mail, grant proposals, Internet appeals, special events, planned giving, cause-related marketing, and membership appeals.

Fund raising costs were 10% of related contributions. (Related contributions, which totaled $5,711,522, are donations received as a result of fund raising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on PHA's audited financial statements for the year ended December 31, 2007.

Source of Funds
Contributions	4,842,230
Contributions - research	535,255
Investment	354,126
Membership dues	183,972
Grants	102,370
Merchandise sales	65,611
In-kind donations	47,695
Other	8,109
Total Income	$6,139,368

Uses of Funds as a % of Total Expenses

Programs: 80%  Fund Raising: 13%  Administrative: 7%

Total income				$6,139,368
	Program expenses			$3,619,497
	Fund raising expenses			589,180
	Administrative expenses			313,108
Total expenses				$4,521,785
Income in Excess of Expenses				1,617,583
Beginning net assets				2,712,709
Ending net assets				4,330,292
Total liabilities				1,658,791
Total assets				$5,989,083