BBB Wise Giving Report for
Pulmonary Hypertension Association

BBB Wise Giving Report issued May 2011
BBB Wise Giving Report expires May 2013


This BBB Accredited charity meets all 20 Standards for Charity Accountability and is a Seal Holder. Find out more...


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Charity Contact Information

Name: Pulmonary Hypertension Association
Address: 801 Roeder Road, Suite 1000
  Silver Spring, MD 20910
Phone: 301-565-3004
Web Address: www.PHAssociation.org
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BBB Wise Giving Alliance Comments

Formerly known as:United Patient's Association for Pulmonary Hypertension

Year, State Incorporated: 1991, Florida
Affiliates: None
Stated Purpose: "to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness."

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Evaluation Conclusions

              

Pulmonary Hypertension Association (PHA) meets the 20 Standards for Charity Accountability.
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Programs

              

PHA works to bring patients, caregivers and medical professionals together to enhance lives and defeat pulmonary hypertension. The organization offers in-person support groups, online communities, and a patient-to-patient support telephone line staffed by pulmonary hypertension (PH) survivors. Every even year, PHA offers the opportunity to patients, family members of PH survivors, and medical professionals to gather together for education and networking at the International Conference and Scientific Sessions. The organization also offers “PHA on the Road” forums, which visit different cities every year to discuss PH. Other programs are designed to meet the needs of diverse populations, including Generation Hope for patients from their late teens to early thirties, PH Plus for those living with multiple chronic illnesses, children and teens living with PH, and caregivers of adult patients and parents of children with PH. PHA’s continuing medical education program offers allied health providers, primary care doctors, specialists and PH experts the up-to-date information on PH diagnosis and treatment.

For the year ended December 31, 2009, PHA's program expenses were:

  
Programs 4,665,880
Total Program Expenses: $4,665,880
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Governance

              

Chief Executive : Rino Aldrighetti, President & CEO
Compensation*:
$181,528

Chair of the Board: Laura D'Anna
Chair's Profession / Business Affiliation: Senior Research Fellow and Associate Director, California State University Long Beach Center for Health Disparities Research

Board Size: 23

Paid Staff Size: 38

*2009 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

              

Method(s) Used:

Direct mail, special events, print advertisements, grant proposals, Internet appeals, planned giving, and membership appeals.
Fund raising costs were 4% of related contributions. (Related contributions, which totaled $7,546,521, are donations received as a result of fund raising activities.)
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Tax Status

              

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

              

The following information is based on PHA's audited financial statements for the year ended December 31, 2009.

Source of Funds  
Contributions 6,492,067
Contributions, research 734,435
Investment income 676,046
Grants 271,180
Membership dues 220,002
In-kind donations 48,839
Merchandise sales 42,677
Conference 30,405
Other 17,250
Total Income $8,532,901


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Uses of Funds as a % of Total Expenses

Programs: 85%  Fund Raising: 6%  Administrative: 9% 

Total income   $8,532,901
  Program expenses $4,665,880
  Fund raising expenses 326,009
  Administrative expenses 486,502
 
Total expenses   $5,478,391
Income in Excess of Expenses   3,054,510
Beginning net assets   5,290,678
Ending net assets   8,345,188
Total liabilities   1,415,206
Total assets   $9,760,394

Note: According to audited financial statements for the year ended December 31, 2009, PHA received in-kind contributions of donated services ($48,839).

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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

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