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Charity Contact Information BBB Wise Giving Alliance Comments Programs

Tax Status Governance Fund Raising Financial

Name:	Pachyonychia Congenita Fund
Address:	2386 East Heritage Way, Suite B
	Salt Lake City, UT 84109
Phone:	877-628-7300
Web Address:	www.pachyonychia.org

Pachyonychia Congenita Fund (PCF) meets the 20 Standards for Charity Accountability.

PCF provides services without cost to patients to provide information, intervention and education on Pachyonychia Congenita (PC). These services include an international registry offering consultations with qualified dermatologists, genetic testing and counseling, sponsored clinical studies, annual patient support meetings, a website with information on care for PC, regular patient web meetings, assistance with disability qualification, intervention with employers and schools or other special needs. PCF provides collaboration opportunities, research funding, consultation resources and data access to physicians and scientists working in keratin disorders. Through the International PC Consortium sponsored by PCF, collaborations and multi-center studies are available. The organization sponsors annual scientific meetings and maintains a database to provide physicians and scientists access to data through a patient registry.

For the year ended December 31, 2010, PCF's program expenses were:

Programs	403,305
Total Program Expenses:	$403,305

Chief Executive : Mary Schwartz, Executive Director

Compensation*:

None

Chair of the Board: Mary Schwartz
Chair's Profession / Business Affiliation: Executive Director, Pachyonychia Congenita Fund

Board Size: 9

Paid Staff Size: 3

*The organization reports that the Executive Director of the organization is unpaid.

Method(s) Used:

Internet appeals.

Fund raising costs were less than 1% of related contributions. (Related contributions, which totaled $369,860, are donations received as a result of fund raising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on PCF's audited financial statements for the year ended December 31, 2010.

Source of Funds
Contributions	369,860
Interest income	199
Total Income	$370,059

Uses of Funds as a % of Total Expenses

Programs: 91%  Fund Raising: 3%  Administrative: 6%

Total income				$370,059
	Program expenses			$403,305
	Fund raising expenses			14,106
	Administrative expenses			26,196
Total expenses				$443,607
Expenses in Excess of Income				(73,548)
Beginning net assets				179,500
Ending net assets				105,952
Total liabilities				31,788
Total assets				$137,740