BBB Wise Giving Report for
NephCure Foundation

BBB Wise Giving Report issued April 2010
BBB Wise Giving Report expires April 2012


Does not meet one or more standards
This charity does not meet one or more of the 20 standards for Charity Accountability. Find out more...


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Charity Contact Information

Name: NephCure Foundation
Address: 15 Waterloo Avenue
  Berwyn, PA 19312
Phone: 610-540-0186
610-540-0186
Web Address: www.nephcure.org
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BBB Wise Giving Alliance Comments

Year, State Incorporated: 2001, Michigan
Affiliates: None
Stated Purpose: "to support research seeking the cause of two debilitating kidney diseases, Nephrotic Syndrome and FSGS, improve treatment and find a cure."

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Evaluation Conclusions

               

NephCure Foundation (NephCure) does not meet the following Standard for Charity Accountability.

Standard 3: Frequency and Attendance of Board Meetings - An organization shall have a minimum of three evenly spaced meetings per year of the full governing body with a majority in attendance, with face-to-face participation. A conference call of the full board can substitute for one of the three meetings of the governing body. For all meetings, alternative modes of participation are acceptable for those with physical disabilities.

NephCure does not meet this Standard because:

  • While the board of directors held two board meetings via telephone, the organization did not hold any in-person meetings in the past year.
NephCure Foundation (NephCure) meets the remaining 19 Standards for Charity Accountability.
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Programs

               

NephCure funds research around the world; serves as a resource for information on Focal Segmental Glomerulosclerosis (FSGS) and Nephrotic Syndrome; aims to attract researchers to the field of nephrology; educates the public about the increasing incidences of kidney diseases; and calls for legislative action to provide more federal funding for research.

For the year ended December 31, 2008, NephCure's program expenses were:

  
Research 1,061,286
Health and education 365,652
Advocacy 54,649
Total Program Expenses: $1,481,587
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Governance

               

Chief Executive : Henry Brehm, Executive Director
Compensation*:
 $0

Chair of the Board: Irving Smokler, PhD
Chair's Profession / Business Affiliation: Real Estate Developer

Board Size: 19

Paid Staff Size: 0

*Compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances. NephCure reports that it is managed by a charity management company, Vizion Group, that was compensated $441,998 in 2008.
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Fund Raising

               

Method(s) Used:

Direct mail, telemarketing, special events, grant proposals, Internet appeals, membership appeals, and cause-related marketing.
Fund raising costs were 11% of related contributions. (Related contributions, which totaled $1,626,256, are donations received as a result of fund raising activities.)
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Tax Status

               

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

               

The following information is based on NephCure's audited financial statements for the year ended December 31, 2008.

Source of Funds  
Special event revenue (net) 1,439,730
Contributions 186,526
Investment income 30,928
Other 7,000
Total Income $1,664,184


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Uses of Funds as a % of Total Expenses

Programs: 84%  Fund Raising: 10%  Administrative: 6% 

Total income   $1,664,184
  Program expenses $1,481,587
  Fund raising expenses 181,289
  Administrative expenses 110,148
 
Total expenses   $1,773,024
Expenses in Excess of Income   (108,840)
Beginning net assets   1,261,958
Other Changes in Net Assets (98,000)
Ending net assets   1,055,118
Total liabilities   617,632
Total assets   $1,672,750

Note: In the financial section above, "other changes in net assets" refers to prior period adjustments.

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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

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