Better Business Bureau

Charity Contact Information BBB Wise Giving Alliance Comments Programs

Tax Status Governance Fund Raising Financial

Name:	National Hemophilia Foundation
Address:	116 West 32nd Street, 11th Floor
	New York, NY 10001-3212
Phone:	212-328-3700 800-424-2634
Web Address:	www.hemophilia.org

National Hemophilia Foundation (NHF) meets the 20 Standards for Charity Accountability.

NHF awards grants to fund research aimed at finding treatments and cures for bleeding and clotting disorders. NHF's Medical and Scientific Advisory Council issues quality of care and treatment recommendations. NHF's public policy agenda works for improved access to high quality medical care, a safe blood supply, access to the full range of safe and effective treatments, adequate reimbursement at the public and private levels, and expanded federal funding for hemophilia treatment centers. NHF's educational programs and initiatives include; First Step, which provides information and support for families of infants and young children newly diagnosed with a bleeding disorder; and the National Youth Leadership Institute, which offers training conferences to bring together individuals, families, healthcare professionals and staff from NHF chapters, associations and hemophilia treatment centers to network and to learn from one another. Project Red Flag is NHF's national public awareness campaign to educate women and healthcare providers about bleeding disorders in women. NHF's free, confidential information resource center, HANDI, answers questions, makes referrals, provides literature and maintains a library collection on bleeding and clotting disorders.

For the fiscal year ended June 30, 2009, NHF's program expenses were:

Health education and training	3,409,452
Community services	2,333,660
Research	2,202,184
Chapter services	795,753
Total Program Expenses:	$8,741,049

Chief Executive : Val Bias, Chief Executive Officer

Compensation*:

$335,511

Chair of the Board: Michael O'Connor
Chair's Profession / Business Affiliation: Consumer

Co-Chair of the Board : Ray Stanhope

Chair's Profession / Business Affiliation: Consumer

Board Size: 15

Paid Staff Size: 40

*July 1, 2008 - June 30, 2009 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:

Direct mail, special events, print advertisements, Internet appeals, planned giving, and membership appeals.

Fund raising costs were 14% of related contributions. (Related contributions, which totaled $4,332,619, are donations received as a result of fund raising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on NHF's audited financial statements for the fiscal year ended June 30, 2009.

Source of Funds
Contribution and grants	2,501,800
Educational seminars and programs	2,340,003
Government grants	1,558,937
Educational/medical literature	1,142,697
Investment income	207,955
Special event revenue (net)	116,333
Other income	67,483
Revenues generated from affiliated chapters	66,897
Legacies and bequests	65,339
Membership	36,080
Contributions from Combined Federal Campaign	25,889
Publication	19,403
In-kind	8,838
Realized and unrealized losses on investments	-428,864
Total Income	$7,728,790

Uses of Funds as a % of Total Expenses

Programs: 83%  Fund Raising: 6%  Administrative: 11%

Total income				$7,728,790
	Program expenses			$8,741,049
	Fund raising expenses			627,785
	Administrative expenses			1,137,972
Total expenses				$10,506,806
Expenses in Excess of Income				(2,778,016)
Beginning net assets				6,617,627
Ending net assets				3,839,611
Total liabilities				3,645,841
Total assets				$7,485,452