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Charity Contact Information BBB Wise Giving Alliance Comments Programs

Tax Status Governance Fund Raising Financial

Name:	National Down Syndrome Society
Address:	666 Broadway, 8th Floor
	New York, NY 10012
Phone:	800-221-4602 212-460-9330
Web Address:	www.ndss.org

National Down Syndrome Society (NDSS) meets the 20 Standards for Charity Accountability.

Throughout the year, NDSS produces and disseminates educational materials, including print materials, educational videos and books. Print materials include more than 40 different brochures and resource lists in English and Spanish. NDSS also publishes "Update," a quarterly newsletter featuring information about topics specific to Down Syndrome and NDSS, and "Upbeat," a magazine written by and for teens and adults with Down Syndrome. NDSS supports regional, national, and international conferences on issues from infancy to adulthood in Down Syndrome, including research, education, health care, employment, housing, and social issues. NDSS advocates on behalf of individuals with Down Syndrome and their families on legislative issues. The NDSS policy team provides grassroots and legislative advocacy training for parents, individuals with Down Syndrome and others, through training programs, conference workshops, an online advocacy center, and e-mail advocacy alerts.

For the fiscal year ended March 31, 2008, NDSS's program expenses were:

Education	605,133
Public awareness	535,930
Research	277,846
Public policy	260,513
Affliates	92,606
Total Program Expenses:	$1,772,028

Chief Executive : Jonathan Colman, President

Compensation*:

$149,070

Chair of the Board: Joseph Bockerstette
Chair's Profession / Business Affiliation: Consultant

Board Size: 17

Paid Staff Size: 13

*April 1, 2007 - March 31, 2008 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:

Direct mail, special events, grant proposals, Internet appeals, planned giving, and cause-related marketing.

Fund raising costs were 15% of related contributions. (Related contributions, which totaled $2,388,440, are donations received as a result of fund raising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on NDSS's audited financial statements for the year ended March 31, 2008.

Source of Funds
Special events (net)	1,223,368
Contributions	985,839
In-kind contributions	179,233
Investment income	55,665
Rental income (net)	36,684
Booklets, films and educational materials	18,043
Miscellaneous income	2,420
Conference income	2,315
Total Income	$2,503,567

Uses of Funds as a % of Total Expenses

Programs: 75%  Fund Raising: 15%  Administrative: 10%

Total income				$2,503,567
	Program expenses			$1,772,028
	Fund raising expenses			360,261
	Administrative expenses			240,286
Total expenses				$2,372,575
Income in Excess of Expenses				130,992
Beginning net assets				2,736,848
Ending net assets				2,867,840
Total liabilities				200,890
Total assets				$3,068,730

Note: According to NDSS, the organization received $179,233 in in-kind contributions consisting of auction items.