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Tax Status Governance Fund Raising Financial

Name:	Muscular Dystrophy Association
Address:	3300 East Sunrise Drive
	Tucson, AZ 85718-3208
Phone:	800-572-1717
Web Address:	www.mda.org

Muscular Dystrophy Association (MDA) meets the 20 Standards for Charity Accountability.

MDA provides services for individuals affected by neuromuscular diseases and reports overseeing a network of more than 200 hospital-affiliated clinics -- including 38 MDA/ALS Centers. At its clinics, MDA offers both initial diagnoses and follow-up treatment. MDA also provides support for those affected by neuromuscular disease through more than 240 support groups, summer camps for over 4,000 children (age 6-17) with neuromuscular diseases, assistance with repairs to medical equipment, an equipment loan program, flu shots and evaluations for physical, occupational and respiratory therapy. For 2009, MDA reports providing funding of $34.7 million for 363 scientific investigations in the U.S. and abroad. MDA also partners with federal government health researchers and biotechnology and biopharmaceutical companies to develop and test potential treatments for neuromuscular diseases and is involved in clinical trials of potential drugs and genetic therapies. The organization offers educational speakers, seminars, videos, brochures, booklets, books, newsletters, national magazines and websites, with some of the publications available in Spanish. The annual MDA Labor Day Telethon provides public information on neuromuscular diseases and raises funds for MDA services and research programs. Some $2,800,380 (or 12.3%) of MDA’s professional and public health education program service activities are conducted in conjunction with fund raising appeals.

For the fiscal year ended December 31, 2008, MDA's program expenses were:

Patient and community services	84,074,013
Research	39,147,352
Professional and public health education	23,469,432
Total Program Expenses:	$146,690,797

Chief Executive : Gerald C. Weinberg, President and CEO

Compensation*:

$379,710

Chair of the Board: R. Rodney Howell, M.D.
Chair's Profession / Business Affiliation: Professor of Pediatrics and Chairman Emeritus, University of Miami

Board Size: 20

Paid Staff Size: 1234

*2008 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:

Direct mail, special events, print advertisements, television, grant proposals, Internet appeals, planned giving, and cause-related marketing.

Fund raising costs were 16% of related contributions. (Related contributions, which totaled $175,900,213, are donations received as a result of fund raising activities.)

MDA incurred joint costs of $6,762,257 for informational materials and activities that included fund raising materials. Of those costs, $3,381,128 was allocated to fund raising expenses, $2,890,865 was allocated to program expenses, and $490,264 was allocated to administrative expenses.

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on MDA's audited financial statements for the year ended December 31, 2009.

Source of Funds
Special events, including telethon (net)	144,866,285
Contributions	23,638,491
Investment income and other	14,937,068
Bequests and legacies	6,488,590
Combined Federal Campaign and Combined Health Appeals	906,847
Total Income	$190,837,281

Uses of Funds as a % of Total Expenses

Programs: 77%  Fund Raising: 15%  Administrative: 8%

Total income				$190,837,281
	Program expenses			$146,690,797
	Fund raising expenses			28,295,533
	Administrative expenses			15,035,229
Total expenses				$190,021,559
Income in Excess of Expenses				815,722
Beginning net assets				68,988,744
Other Changes in Net Assets				4,696,526
Ending net assets				74,500,992
Total liabilities				54,591,188
Total assets				$129,092,180

Note: In the financial section above, "other changes in net assets" refers to changes in unrecognized benefit plan costs ($4,696,526).