Better Business Bureau

Charity Contact Information BBB Wise Giving Alliance Comments Programs

Tax Status Governance Fund Raising Financial

Name:	Lupus Foundation of America
Address:	2000 L Street, NW, Suite 710
	Washington, DC 20036
Phone:	202-349-1155 800-558-0121
Web Address:	www.lupus.org

Lupus Foundation of America (LFA) meets the 20 Standards for Charity Accountability.

LFA pursues its mission through three core strategies: advancing the science and medicine of lupus; creating awareness of the disease and advocating on behalf of all people with lupus; and supporting people with lupus and their professional health care providers. LFA’s national research program is dedicated to bringing down the barriers that have obstructed basic biomedical, clinical, epidemiological, behavioral, and translational research for decades. LFA addresses the barriers by funding research grants to address issues of importance for people with lupus, by stimulating federal research funding for lupus, and by convening stakeholders to collaborate on projects that advance the science and medicine of lupus. LFA works to increase public awareness and knowledge of lupus prevention, diagnosis, and treatment by distributing PSAs to all media outlets; disseminating education materials to the general public; and recently by launching a social media outreach program and stimulating congressional support for a national public awareness campaign. LFA provides information and education through its national network of affiliated chapters, offices and community support groups, including distribution of the organization’s magazine, Lupus Now™, a website, a network of nurse health educators, peer-reviewed literature and brochures, educational programs for patients, CME programs for physicians, support group program, educational seminars and medical conferences.

For the fiscal year ended September 30, 2009, LFA's program expenses were:

Public information and education	3,685,667
Network support and services	1,655,332
Research	993,220
Professional relations and education	754,222
Patient eduation and support	692,359
Total Program Expenses:	$7,780,800

Chief Executive : Sandra C. Raymond, President & CEO

Compensation*:

$266,498

Chair of the Board: Karen B. Evans
Chair's Profession / Business Affiliation: Executive Director, Will & Jada Smith Family Foundation

Board Size: 23

Paid Staff Size: 35

*October 1, 2008 - September 30, 2009 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:

Direct mail, telemarketing, special events, print advertisements, grant proposals, Internet appeals, planned giving, and cause-related marketing.

Fund raising costs were 21% of related contributions. (Related contributions, which totaled $9,645,329, are donations received as a result of fund raising activities.)

LFA incurred joint costs of $3,641,248 for informational materials and activities that included fund raising materials. Of those costs $1,846,704 was allocated to program expenses, $1,704,844 was allocated to fund raising expenses, and $89,700 was allocated to administrative expenses.

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on LFA's audited financial statements for the fiscal year ended September 30, 2009.

Source of Funds
Public support	3,517,537
Donated goods	3,439,192
Special events (net)	1,625,848
Membership dues	467,864
Donated services	465,571
Publication sales	183,558
Wills and bequests	129,317
Contributions from affiliates	110,648
Investment income	70,570
Miscellaneous income	31,474
Royalty income	27,860
Convention revenue	5,815
Total Income	$10,075,254

Uses of Funds as a % of Total Expenses

Programs: 75%  Fund Raising: 20%  Administrative: 5%

Total income				$10,075,254
	Program expenses			$7,780,800
	Fund raising expenses			2,052,161
	Administrative expenses			542,190
Total expenses				$10,375,151
Expenses in Excess of Income				(299,897)
Beginning net assets				2,977,041
Ending net assets				2,677,144
Total liabilities				1,989,754
Total assets				$4,666,898