BBB Wise Giving Report for
Foundation for PSP | CBD and Related Brain Diseases

BBB Wise Giving Report issued February 2011
BBB Wise Giving Report expires September 2012


Does not meet one or more standards
This charity does not meet one or more of the 20 standards for Charity Accountability. Find out more...


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Charity Contact Information

Name: Foundation for PSP | CBD and Related Brain Diseases
Address: 30 East Padonia Road, Suite 201
  Timonium, MD 21093
Phone: 443-578-5666
800-457-4777
Web Address: www.curepsp.org
Also known as:CurePSP
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BBB Wise Giving Alliance Comments

Formerly known as:Society for Progressive Supranuclear Palsy

Year, State Incorporated: 1991, Maryland
Affiliates: None
Stated Purpose: "to increase awareness of progressive supranuclear palsy, corticobasal degeneration, and related brain diseases; fund research toward cure and prevention; educate health professionals; and provide support, information and hope for affected persons and their families."

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Evaluation Conclusions

               

Foundation for PSP | CBD and Related Brain Diseases (The Foundation) does not meet the following Standard for Charity Accountability.

Standard 14: Budget - Have a board-approved annual budget for its current fiscal year, outlining projected expenses for major program activities, fund raising, and administration.

The Foundation does not meet this Standard because, when the organization provided budget information, it indicated that the budget:

  • Did not identify total projected program service expenses.
  • Did not identify total projected administrative expenses.
  • Did not break program  expenses down by major program category.
Foundation for PSP | CBD and Related Brain Diseases (The Foundation) meets the remaining 19 Standards for Charity Accountability.
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Programs

               

The Foundation provides patients, caregivers and healthcare professionals with support and education on progressive supranuclear palsy, corticobasal degeneration, and related brain diseases through its educational materials, family conferences, support groups, website and quarterly magazine. The organization also funds research grants to help find a cure for PSP, CBD and related diseases and to develop treatment options.

For the fiscal year ended June 30, 2009, The Foundation's program expenses were:

  
Research 3,256,004
Outreach and education 283,634
Communications and public awareness 166,362
Total Program Expenses: $3,706,000
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Governance

               

Chief Executive : Richard Gordon Zyne, President and CEO
Compensation*:
 $104,000

Chair of the Board: Janet Edmunson
Chair's Profession / Business Affiliation: Private consultant

Board Size: 15

Paid Staff Size: 9

*July 1, 2008 - June 30, 2009 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

               

Method(s) Used:

Direct mail, telemarketing, special events, grant proposals, Internet appeals, and planned giving.
Fund raising costs were 6% of related contributions. (Related contributions, which totaled $4,591,747, are donations received as a result of fund raising activities.)
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Tax Status

               

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

               

The following information is based on The Foundation's audited financial statements for the fiscal year ended June 30, 2009.

Source of Funds  
Contributions 4,396,233
Special events 137,841
Interest and dividend income 57,673
Realized and unrealized losses on investment -68,429
Total Income $4,523,318


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Uses of Funds as a % of Total Expenses

Programs: 91%  Fund Raising: 7%  Administrative: 2% 

Total income   $4,523,318
  Program expenses $3,706,000
  Fund raising expenses 276,413
  Administrative expenses 70,490
 
Total expenses   $4,052,903
Income in Excess of Expenses   470,415
Beginning net assets   1,165,255
Ending net assets   1,635,670
Total liabilities   2,545,639
Total assets   $4,181,309


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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

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