BBB Wise Giving Report for
Dystonia Medical Research Foundation

BBB Wise Giving Report issued May 2011
BBB Wise Giving Report expires May 2013


This BBB Accredited charity meets all 20 Standards for Charity Accountability. Find out more...


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Charity Contact Information

Name: Dystonia Medical Research Foundation
Address: One East Wacker Drive, Suite 2810
  Chicago, IL 60601
Phone: 800-377-3978
312-755-0198
Web Address: http://www.dystonia-foundation.org
Also known as:DMRF
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BBB Wise Giving Alliance Comments

Year, State Incorporated: 1976, California
Affiliates: None
Stated Purpose: The mission of the DMRF is to advance research for more treatments and ultimately a cure, to promote awareness and education, and to support the needs and well being of affected individuals and families.

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Evaluation Conclusions

               

Dystonia Medical Research Foundation meets the 20 Standards for Charity Accountability.
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Programs

               

Founded in 1976, the Dystonia Medical Research Foundation (DMRF) is a 501(c)3 organization dedicated to serving all people with dystonia and their families. Since its inception, the DMRF has grown from a small family-based foundation into a dynamic membership-driven organization led by a board of directors and network of volunteers with personal connections to dystonia. Because dystonia hits so close to home for the directors and volunteers, the DMRF leadership is motivated by an unrelenting drive to find a cure and an unwavering commitment to serving people affected by dystonia. Our program areas revolve around activities related to our Science Program, awareness and education, membership and support, and advocacy.

For the fiscal year ended December 31, 2009, Dystonia Medical Research Foundation's program expenses were:

  
Science 1,647,569
Membership and Support 302,231
Awareness and Education 300,831
Advocacy 113,714
Total Program Expenses: $2,364,345
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Governance

               

Chief Executive : Janet L. Hieshetter, Executive Director
Compensation*:

Chair of the Board: Arthur Kessler
Chair's Profession / Business Affiliation: Principal at Kessler Warshauer Ventures

Co-Chair of the Board : Rosalie Lewis

Chair's Profession / Business Affiliation: Philanthropist

Co-Chair of the Board : Deborah Kilpatrick, PhD

Chair's Profession / Business Affiliation: CardioDx, Inc.

Board Size: 20

Paid Staff Size: 11

*Compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

               

Method(s) Used:

direct mail, invitations to fund raising events, print advertisements, grant proposals, internet, planned giving arrangements, membership
Fund raising costs were 12% of related contributions. (Related contributions, which totaled $2,731,455, are donations received as a result of fund raising activities.)
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Tax Status

               

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

               

The following information is based on Dystonia Medical Research Foundation's audited financial statements for the fiscal year ended December 31, 2009.

Source of Funds  
Donations and Grants 2,532,960
Special Events 198,495
Investment Income 48,388
Other 16,123
Total Income $2,795,966


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Uses of Funds as a % of Total Expenses

Programs: 82%  Fund Raising: 12%  Administrative: 6% 

Total income   $2,795,966
  Program expenses $2,364,345
  Fund raising expenses 329,549
  Administrative expenses 159,982
 
Total expenses   $2,853,876
Expenses in Excess of Income   (57,910)
Beginning net assets   3,157,671
Other Changes in Net Assets (57,910)
Ending net assets   3,099,761
Total liabilities   460,162
Total assets   $3,559,923


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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

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