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Tax Status Governance Fund Raising Financial

Name:	Cystic Fibrosis Foundation
Address:	6931 Arlington Road
	Bethesda, MD 20814
Phone:	301-951-4422 800-344-4823
Web Address:	www.cff.org

Cystic Fibrosis Foundation (CFF) meets the 20 Standards for Charity Accountability.

To advance the search for a cure the Cystic Fibrosis Foundation's drug development program, through a matching-awards program with biotechnology companies, and a specialized CF clinical trials network, has attracted industry involvement in CF research. CFF manages a virtual drug discovery and development pipeline that they report includes more than 30 potential new CF therapies. CCF accredits 115 CF care centers nationwide to provide multi-disciplinary, specialized care for people with the disease. Cystic Fibrosis Services, Inc., a CFF subsidiary, was established as a specialty pharmacy for people with CF to provide availability and access to CF medications, as well as assistance with the complex insurance issues faced in obtaining these medications. Today, CF Services provides personalized services, patient advocacy, patient education and reimbursement support to the CF community. As part of its education efforts, CFF provides free information through its website, publications and videos for the general public. Some ($4,804,000 or 25%) of CFF's public and professional information and education program activities are carried out in conjunction with fund raising appeals.

For the year ended December 31, 2006, CFF's program expenses were:

Medical programs	146,595,243
Public and professional information and education	19,013,125
Community services	6,641,103
Total Program Expenses:	$172,249,471

Chief Executive : Robert J. Beall, Ph.D., President and CEO

Compensation*:

$567,902

Chair of the Board: Catherine C. McLoud
Chair's Profession / Business Affiliation: CF parent and hospitality industry consultant

Board Size: 19

Paid Staff Size: 640

*2006 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:

Direct mail, telemarketing, special events, grant proposals, Internet appeals, planned giving, and cause-related marketing.

Fund raising costs were 14% of related contributions. (Related contributions, which totaled $133,946,072, are donations received as a result of fund raising activities.)

CFF incurred joint costs of $14,232,800 for informational materials and activities that included fund raising materials. Of those costs $9,429,230 was allocated to fund raising expenses and $4,803,570 was allocated to program expenses.

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on CFF's audited (consolidated with its affiliates and chapters) financial statements for the year ended December 31, 2006.

Source of Funds
Special event revenue	82,690,325
Pharmacy services	61,503,035
General contributions	51,255,747
Investment income	25,436,064
Other	5,470,642
Total Income	$226,355,813

Uses of Funds as a % of Total Expenses

Programs: 88%  Fund Raising: 10%  Administrative: 2%

Total income				$226,355,813
	Program expenses			$172,249,471
	Fund raising expenses			18,770,311
	Administrative expenses			4,889,045
Total expenses				$195,908,827
Income in Excess of Expenses				30,446,986
Beginning net assets				164,433,389
Ending net assets				194,880,375
Total liabilities				79,765,551
Total assets				$274,645,926