BBB Wise Giving Report for
Children's Tumor Foundation

BBB Wise Giving Report issued December 2009
BBB Wise Giving Report expires December 2011


This BBB Accredited charity meets all 20 Standards for Charity Accountability and is a Seal Holder. Find out more...


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Charity Contact Information

Name: Children's Tumor Foundation
Address: 95 Pine Street, 16th Floor
  New York, NY 10005
Phone: 212-344-6633
Web Address: www.ctf.org
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BBB Wise Giving Alliance Comments

Year, State Incorporated: 1978, New York
Affiliates: 35 chapters
Stated Purpose: "to end neurofibromatosis (NF) by funding research, increasing public awareness, supporting patients and families, and encouraging the establishment of NF clinics."

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Evaluation Conclusions

               

Children's Tumor Foundation (CTF) meets the 20 Standards for Charity Accountability.
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Programs

               

CTF extends grants to scientists for studies into the causes of and treatments for neurofibromatosis types 1 and 2, Schwannomatosis and related disorders (NF). Primary research funding supports young investigators, drug discovery seed grants, pilot clinical trials, and a national consortium of research institutions got preclinical testing of promising compounds. For kids with NF, CTF hosts a summer camp where they are able to develop friendships and have an outlet for discussing questions and collective concerns. Support groups and other programs are coordinated by CTF chapters and affiliates. In addition to newsletters, CTF also produces guides and brochures for patients and their families on NF topics.

For the year ended December 31, 2008, CTF's program expenses were:

  
Research and medical 3,767,563
Public education and patient support services 1,469,858
Total Program Expenses: $5,237,421
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Governance

               

Chief Executive : John W. Risner, President and Executive Director
Compensation*:
 $120,000

Highest Paid Executive: Kim Hunter-Schaedle, Chief Scientific Officer
Compensation*: $175,000

Chair of the Board: Suzanne Earle
Chair's Profession / Business Affiliation: Real Estate, Earle & Associates

Co-Chair of the Board : Nate Walker

Chair's Profession / Business Affiliation: Real Estate

Board Size: 19

Paid Staff Size: 26

*2008 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

               

Method(s) Used:

Direct mail, special events, print advertisements, grant proposals, Internet appeals, cause-related marketing, and membership appeals.
Fund raising costs were 9% of related contributions. (Related contributions, which totaled $7,014,238, are donations received as a result of fund raising activities.)
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Tax Status

               

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

               

The following information is based on CTF's audited financial statements for the year ended December 31, 2008.

Source of Funds  
Contributions 4,313,332
Special events (net) 1,403,157
Corporations and foundations 762,314
Contributed goods and services 354,716
Federated fundraising 135,039
Interest and dividends 101,792
Government grants 42,000
Other income 10,932
Membership 3,680
Gain (loss) on sale of assets -536
Realized and unrealized gain (loss) on investments -699,073
Total Income $6,427,353


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Uses of Funds as a % of Total Expenses

Programs: 82%  Fund Raising: 10%  Administrative: 8% 

Total income   $6,427,353
  Program expenses $5,237,421
  Fund raising expenses 627,623
  Administrative expenses 501,642
 
Total expenses   $6,366,686
Income in Excess of Expenses   60,667
Beginning net assets   3,862,954
Ending net assets   3,923,621
Total liabilities   824,148
Total assets   $4,747,769

Note: CTF's audited financial statements report in-kind donations in the amount of $354,716. Included in this amount is $275,000 (land), $68,151 (fund raising goods), $10,002 (accounting services) and $1,563 (program services).

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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

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