BBB Wise Giving Report for
Barth Syndrome Foundation

BBB Wise Giving Report issued May 2011
BBB Wise Giving Report expires May 2013


This BBB Accredited charity meets all 20 Standards for Charity Accountability and is a Seal Holder. Find out more...


Find out more about this charity:

Back To Top

Charity Contact Information

Name: Barth Syndrome Foundation
Address: Post Office Box 618
  Larchmont, NY 10538
Phone: 914-834-1771
Web Address: www.barthsyndrome.org
Back To Top

BBB Wise Giving Alliance Comments

Year, State Incorporated: 2000, Delaware
Affiliates: Barth Syndrome Trust (United Kingdom and Europe), Barth Syndrome Foundation of Canada, and Barth Trust of South Africa.

Stated Purpose: "to save lives through education, advances in treatment and pursuit of a cure for Barth syndrome."

Back To Top

Evaluation Conclusions

               

Barth Syndrome Foundation (BSF) meets the 20 Standards for Charity Accountability.
Back To Top

Programs

               

BSF's principal program activities are family support, outreach, and education; physician awareness and education; a medical databank and biorepository, and the facilitation of advances in science and medicine through a research grant program. BSF awards grants for studies of natural history, biochemical basis, gene production function, and treatment of Barth Syndrome. At medical and scientific conferences, BSF sponsors informational booths to increase awareness of Barth Syndrome. In addition to publishing newsletters, BSF also operates a list-serv that lets families who have a child with Barth Syndrome reach out to others able to relate to their situations.

For the year ended December 31, 2010, BSF's program expenses were:

  
Program services 902,379
Total Program Expenses: $902,379
Back To Top

Governance

               

Chief Executive : Valerie M. Bowen, President
Compensation*:
 $67,624

Highest Paid Executive: Matthew J. Toth, PhD, Director of Science
Compensation*: $140,445

Chair of the Board: Stephen B. McCurdy
Chair's Profession / Business Affiliation: Senior Vice President, American Express Company

Board Size: 11

Paid Staff Size: 3

*2010 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Back To Top

Fund Raising

               

Method(s) Used:

Direct mail, special events, Internet appeals, and grant proposals.
Fund raising costs were 4% of related contributions. (Related contributions, which totaled $769,756, are donations received as a result of fund raising activities.)
Back To Top

Tax Status

               

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
Back To Top

Financial

               

The following information is based on BSF's audited financial statements for the year ended December 31, 2010.

Source of Funds  
Contributions 654,756
Grant income 115,000
Interest income 26,121
Unrealized loss on investments -746
Total Income $795,131


chart



Uses of Funds as a % of Total Expenses

Programs: 85%  Fund Raising: 3%  Administrative: 12% 

Total income   $795,131
  Program expenses $902,379
  Fund raising expenses 33,388
  Administrative expenses 131,225
 
Total expenses   $1,066,992
Expenses in Excess of Income   (271,861)
Beginning net assets   2,204,320
Ending net assets   1,932,459
Total liabilities   100,042
Total assets   $2,032,501


Back To Top

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

Send to:



What is an Accredited Charity