BBB Wise Giving Report for
ALS Therapy Development Foundation

BBB Wise Giving Report issued May 2012
BBB Wise Giving Report expires April 2013


This BBB Accredited charity meets all 20 Standards for Charity Accountability. Find out more...


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Charity Contact Information

Name: ALS Therapy Development Foundation
Address: 215 First Street, 2nd Floor
  Cambridge, MA 02142
Phone: 617-441-7200
Web Address: http://www.als.net
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BBB Wise Giving Alliance Comments

Year, State Incorporated: 1999, Massachusetts
Affiliates: Alsgen, Inc.

Stated Purpose: "to identify viable targets for therapy development and expeditiously manage the creation if those treatments that will arrest the suffering of today's ALS patients."

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Evaluation Conclusions

               

ALS Therapy Development Foundation (ALSTDF) meets the 20 Standards for Charity Accountability.
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Programs

               

ALSTDF operates a discovery program aimed at identifying the molecular differences of disease at the gene and protein level. It uses information gathered from preclinical and clinical samples to achieve that knowledge. These data allow a team of drug development experts to execute a drug efficacy and functional activity screening program. Combined, these programs work together to achieve the organization’s mission. ALSTDF also holds seminars and produces newsletters informing patients, families, caretakers, and physicians on advances taking place in the field.

For the year ended December 31, 2009, ALSTDF's program expenses were:

  
Science programs 2,613,109
Lab 2,291,975
Communication 892,480
Patient services 441,290
Informatics 291,657
Business development 234,000
Clinical 23,035
Total Program Expenses: $6,787,546
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Governance

               

Chief Executive : Steven Perrin, Ph.D., Chief Executive Office and Chief Scientific Officer
Compensation*:
 $347,785

Chair of the Board: Augie Nieto
Chair's Profession / Business Affiliation: Co-founder of Life Fitness, Inc.

Board Size: 12

Paid Staff Size: 43

*2009 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

               

Method(s) Used:

Direct mail, telemarketing, special events, print advertisements, grant proposals, Internet appeals, and planned giving.
Fund raising costs were 8% of related contributions. (Related contributions, which totaled $8,985,754, are donations received as a result of fund raising activities.)
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Tax Status

               

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

               

The following information is based on ALSTDF's audited financial statements for the year ended December 31, 2009.

Source of Funds  
Grants and contracts 7,002,500
Special events and contributions, net 1,411,263
Donated goods and services 273,518
Contributions 249,949
Interest and other 48,591
Donated equipment 48,524
Total Income $9,034,345


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Uses of Funds as a % of Total Expenses

Programs: 81%  Fund Raising: 8%  Administrative: 9%  Other Expenses: 2%

Total income   $9,034,345
  Program expenses $6,787,546
  Fund raising expenses 685,821
  Administrative expenses 795,525
  Other Expenses 196,211
Total expenses   $8,465,103
Income in Excess of Expenses   569,242
Beginning net assets   3,698,415
Ending net assets   4,267,657
Total liabilities   661,641
Total assets   $4,929,298

Note 1: In the above financial summary, "other expenses" represents loss on sale of property and equipment ($-32,561) and impairment loss ($-163,650).

Note 2: According to ALSTDF's 2009 audited financial statements, the organization received in-kind donations in the amount of $273,518 which includes program supplies and materials ($184,784) and professional services ($88,734).

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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

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