BBB Wise Giving Report for
Alpha-1 Foundation

BBB Wise Giving Report issued March 2011
BBB Wise Giving Report expires March 2013


This BBB Accredited charity meets all 20 Standards for Charity Accountability and is a Seal Holder. Find out more...


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Charity Contact Information

Name: Alpha-1 Foundation
Address: 2937 SW 27th Avenue,
Suite 302
  Miami, FL 33133
Phone: 305-507-9888
305-567-9888
Web Address: www.alphaone.org
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BBB Wise Giving Alliance Comments

Year, State Incorporated: 1995, Florida
Affiliates: COPD (Chronic Obstructive Pulmonary Disease) Foundation; AlphaNet, Inc. (AN); Point of Care, Inc. (for profit AN subsidiary); Disease Management Network (not-for-profit AN subsidiary)

Stated Purpose: "to provide the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency."

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Evaluation Conclusions

              

Alpha-1 Foundation (the Foundation) meets the 20 Standards for Charity Accountability.
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Programs

              

The Foundation reports that it operates about 60 clinical resource centers that provide patient care and education for persons with pulmonary illnesses and/or liver conditions associated with Alpha-1 Antitrypsin Deficiency (AAT). The Foundation works with Alpha-1 investigators and funds an Alpha-1 research registry, DNA and tissue bank, and genetics laboratory, as well as academic and/or clinical research programs. It also organizes scientific meetings, conferences, workshops and symposia. Categories of grants and awards are available from the Foundation for meritorious projects including clinical treatment, pilot and feasibility, postdoctoral research fellowship, and ethical, legal and social issues relating to AAT Deficiency. AAT testing kits are distributed through a partnership with the Florida Department of Health and the University of Florida. The Foundation promotes awareness of AAT among the medical profession and public, with a focus on educating and recommending Alpha-1 testing for high-risk individuals, such as those diagnosed with Chronic Obstructive Pulmonary Disease (COPD) and unexplained liver disease. In the arena of public policy, the Foundation monitors legislative and regulatory issues and stakes positions on such issues as increased research funding, new therapeutics, screening and detection, access to care, medical privacy, genetic non-discrimination, and blood product safety.

For the fiscal year ended June 30, 2010, the Foundation's program expenses were:

  
COPD Foundation, Inc. 3,573,843
Alpha-1 research network 2,176,823
Other Alpha-1 services 552,460
Florida detection program 321,449
Alpha-1 registry and ACT trial 247,265
PFT study 228,217
Alpha-1 advocacy 174,375
The Alpha-1 project 134,002
Respiratory logistics 114,141
Total Program Expenses: $7,522,575
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Governance

              

Chief Executive : John W. Walsh, President and Chief Executive Officer
Compensation*:
$200,000

Chair of the Board: Albert Rees
Chair's Profession / Business Affiliation: Retired Railroad Executive

Board Size: 11

Paid Staff Size: 15

*July 1, 2009 - June 30, 2010 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

              

Method(s) Used:

Direct mail, special events, grant proposals, Internet appeals, planned giving, and cause-related marketing.
Fund raising costs were 10% of related contributions. (Related contributions, which totaled $10,016,137, are donations received as a result of fund raising activities.)
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Tax Status

              

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

              

The following information is based on the Foundation's audited financial statements (consolidated with affiliates) for the fiscal year ended June 30, 2010.

Source of Funds  
Contributions, bequests and grant revenues 8,345,595
Donated shares 1,013,200
Other income 963,199
Special events revenues 657,342
Investment income 85,324
Total Income $11,064,660


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Uses of Funds as a % of Total Expenses

Programs: 81%  Fund Raising: 11%  Administrative: 8% 

Total income   $11,064,660
  Program expenses $7,522,575
  Fund raising expenses 1,001,134
  Administrative expenses 691,150
 
Total expenses   $9,214,859
Income in Excess of Expenses   1,849,801
Beginning net assets   8,216,633
Ending net assets   10,066,434
Total liabilities   1,461,194
Total assets   $11,527,628


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