BBB Wise Giving Report for
Alliance for Lupus Research

BBB Wise Giving Report issued July 2010
BBB Wise Giving Report expires July 2012


This BBB Accredited charity meets all 20 Standards for Charity Accountability and is a Seal Holder. Find out more...


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Charity Contact Information

Name: Alliance for Lupus Research
Address: 28 West 44th Street,
Suite 501
  New York, NY 10036
Phone: 212-218-2840
800-867-1743
Web Address: www.lupusresearch.org
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BBB Wise Giving Alliance Comments

Year, State Incorporated: 1999, Delaware
Affiliates: None

Stated Purpose: "to prevent, treat and cure lupus through medical research."

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Evaluation Conclusions

              

Alliance for Lupus Research (ALR) meets the 20 Standards for Charity Accountability.
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Programs

              

ALR operates medical research programs and it has reportedly supported research that has led to the development of 9 therapeutic agents out of approximately a dozen currently in the clinical pipeline. In 2005, ALR launched a consortium of lupus researchers, the International SLE Genetics (SLEGEN) Consortium, to find the genes responsible for lupus. ALR also encourages cross-sector and cross-discipline partnerships to foster an innovative research environment by funding collaborative meetings where researchers are encouraged to exchange ideas. In addition, ALR has a public policy program with the intent to increase federal funding for lupus research. The main goals of this ALR program are to educate members of Congress and the Administration about the importance of funding lupus research, to increase federal funding for lupus research, and to secure additional funding for lupus research through key federal agencies. ALR reports that through its research efforts, funding for lupus research (about $8 million since 2004) has been obtained under the DoD Peer Reviewed Medical Research Program (PRMRP). Some ($30,884 or 4%) of ALR's scientific program activities are carried out in conjunction with fundraising appeals.

For the year ended December 31, 2009, ALR's program expenses were:

  
Research 5,185,201
Scientific programs 857,156
Public policy 216,125
Total Program Expenses: $6,258,482
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Governance

              

Chief Executive : Barbara Boyts, President
Compensation*:
$282,250

Chair of the Board: Robert Wood Johnson, IV
Chair's Profession / Business Affiliation: Chairman and CEO, The Johnson Co. and the New York Jets, LLC

Board Size: 11

Paid Staff Size: 24

*2008 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

              

Method(s) Used:

Direct mail, special events, grant proposals, Internet appeals, planned giving, and walkathon.
Fund raising costs were 3% of related contributions. (Related contributions, which totaled $49,087,239, are donations received as a result of fund raising activities.)
ALR incurred joint costs of $154,421 for informational materials and activities that included fund raising materials. Of those costs, $123,537 was allocated to fund raising expenses and $30,884 was allocated to program expenses.
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Tax Status

              

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

              

The following information is based on ALR's audited financial statements for the year ended December 31, 2009.

Source of Funds  
Contributions 46,357,187
Walkathon income, net 2,106,817
Special events income, net 623,235
Rental income, net 254,849
Interest income 66,279
Unrealized gain on investments 24,827
Realized loss on sale of investments -4,722
Realized loss on sale of land held for resale -435,511
Total Income $48,992,961


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Uses of Funds as a % of Total Expenses

Programs: 72%  Fund Raising: 18%  Administrative: 10% 

Total income   $48,992,961
  Program expenses $6,258,482
  Fund raising expenses 1,579,451
  Administrative expenses 834,271
 
Total expenses   $8,672,204
Income in Excess of Expenses   40,320,757
Beginning net assets   6,606,443
Ending net assets   46,927,200
Total liabilities   4,969,301
Total assets   $51,896,501


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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

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