BBB Wise Giving Report for
VHL Family Alliance

BBB Wise Giving Report issued November 2010
BBB Wise Giving Report expires November 2012


This BBB Accredited charity meets all 20 Standards for Charity Accountability and is a Seal Holder. Find out more...


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Charity Contact Information

Name: VHL Family Alliance
Address: 2001 Beacon Street
Suite 208
  Boston, MA 02135-7787
Phone: 800-767-4845
617-277-5667
Web Address: www.vhl.org
Also known as:Cancer Research Fund – VHL Family Alliance
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BBB Wise Giving Alliance Comments

Year, State Incorporated: 1993, Massachusetts
Affiliates: International affiliates, and 36 chapters
Stated Purpose: "to improve diagnosis, treatment, and quality of life for people affected by von Hippel-Lindau disease."

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Evaluation Conclusions

               

VHL Family Alliance (VHLFA) meets the 20 Standards for Charity Accountability.
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Programs

               

VHLFA focuses its activities on two major program divisions: Education and Research. The Education Program works with families, friends, and physicians to inform each of these contingents. VHLFA provides person-to-person support through telephone, e-mail, and internet discussions, and helps people understand the affects of VHL, how to manage one’s health with VHL, and how to find the best resources for the problem at hand. Educational publications such as the newsletter, the “VHL Handbook” and its companion “Kids’ Edition” work to provide a conceptual framework for both the patient and the physician. VHLFA’s Research Program works with the research community to provide data and tissue for research. VHLFA raises money and awards research grants to encourage young researchers in this area.

For the fiscal year ended June 30, 2009, VHLFA's program expenses were:

  
Education 157,705
Research 61,020
Total Program Expenses: $218,725
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Governance

               

Chief Executive : Joyce W. Graff, Executive Director
Compensation*:
 $17,579

Highest Paid Executive: Lisa Steindel,Director of Development
Compensation*: $31,800

Chair of the Board: Jeanne McCoy
Chair's Profession / Business Affiliation: Teacher, Greenville, South Carolina

Co-Chair of the Board : Thomas Rath

Chair's Profession / Business Affiliation: Senior Manager, Gallup Organization

Board Size: 10

Paid Staff Size: 4

*July 1, 2008 to June 30, 2009 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

               

Method(s) Used:

direct mail, special events, print advertisements, radio, grant proposals, internet appeals, membership appeals
Fund raising costs were 11% of related contributions. (Related contributions, which totaled $237,240, are donations received as a result of fund raising activities.)
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Tax Status

               

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

               

The following information is based on VHLFA's audited financial statements for the fiscal year ended June 30, 2009.

Source of Funds  
Contributions unrestricted 220,026
Membership dues 21,125
Grants received 10,000
Donated services 7,864
Contributions research 7,214
Interest and dividends 5,201
Registrations 2,383
Sales 2,322
Total Income $276,135


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Uses of Funds as a % of Total Expenses

Programs: 77%  Fund Raising: 9%  Administrative: 14% 

Total income   $276,135
  Program expenses $218,725
  Fund raising expenses 25,029
  Administrative expenses 40,859
 
Total expenses   $284,613
Expenses in Excess of Income   (8,478)
Beginning net assets   114,117
Ending net assets   105,639
Total liabilities   31,217
Total assets   $136,856


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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

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