Better Business Bureau

Charity Contact Information BBB Wise Giving Alliance Comments Programs

Tax Status Governance Fund Raising Financial

Name:	Epilepsy Foundation of Kentuckiana, Inc.
Address:	501 E. Broadway # 380
	Louisville, KY 40202
Phone:	502-584-8817
Web Address:	www.efky.org

Epilepsy Foundation of Kentuckiana Inc. meets the 20 Standards for Charity Accountability.

The Epilepsy Foundation of Kentuckiana's services and programs include the following: Advocacy--The Epilepsy Foundation of Kentuckiana advocates for individuals with epilepsy in many different capacities. At a local level, the Foundation fights for the rights of people who have been discriminated against in housing, employment, the receipt of appropriate services and treatment, and in education. At state and national levels, the Foundation encourages legislators to increase funding for research and services that improve the quality of life for individuals with epilepsy. Educational Programs and In-service Training--The Foundation provides training for school personnel, the medical community, and the business community to teach people how to correctly respond to seizures. These in-service trainings are also designed to provide people with a basic understanding of epilepsy. Public Education--The Foundation is active in the community providing information to the general public by distributing literature and providing information at health and community fairs. H.O.P.E. Presentations (Helping Other People with Epilepsy)--HOPE presentations are designed to address a variety of topics relating to epilepsy and are easily modified for presentations at civic clubs, in school classrooms, or at staff meetings. Support Services--From phone trees to meetings, the Epilepsy Foundation of Kentuckiana has support services to meet the community's needs. Support is available for people with epilepsy, their loved ones, and the people who care for them. The Epilepsy Foundation of Kentuckiana offers a phone tree, e-mail network, group meetings, social events, and educational seminars for both adults and teens. Information and Referral--Information is available on all topics related to epilepsy. The Foundation provides information for the general public, newly diagnosed people with epilepsy and their families, and health care professionals. The Foundation also provides referrals to doctors and related service providers. A quarterly newsletter, The Illuminator, is available for anyone who wants to keep up on epilepsy related issues and the Foundation's services. Financial Assistance--The Epilepsy Foundation of Kentuckiana can provide financial support to individuals with epilepsy and their families. In extreme cases, where all resources have been exhausted, the Foundation can provide assistance with the costs of medications, treatment, or other special and necessary needs. The Foundation also sponsors the annual Shannon O' Daniel Memorial Scholarship for college bound high school seniors and also pays for a number of enrollment fees so that children with epilepsy can enjoy a special camp designed just for them.

For the fiscal year ended December 31, 2006, the agency's program expenses were:

Patient Assistance	67,953
Public Education	62,619
Professional Education	37,460
Community Services	20,450
Total Program Expenses:	$188,482

Chief Executive : Debbie McGrath, Executive Director

Compensation*:

Chair of the Board: Dee Shaughnessy, President
Chair's Profession / Business Affiliation:

Board Size: 11

Paid Staff Size: 5

Method(s) Used:

Fund raising methods include direct mail and internet appeals, special events, and grant proposals. In addition, the Epilepsy Foundation of Kentuckiana is a member of Community Health Charities.

Fund raising costs were 9% of related contributions. (Related contributions, which totaled $307,703, are donations received as a result of fund raising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on the agency’s audited financial statements for the year that ended December 31, 2006. Ending net assets as reported below are unrestricted net assets. Total assets as reported include $6,279 in equipment and leasehold improvements.

Source of Funds
Contributions and grants	225,078
Special events, net	64,505
Combined Health Appeal	18,120
Other	1,842
Total Income	$309,545

Uses of Funds as a % of Total Expenses

Programs: 76%  Fund Raising: 12%  Administrative: 12%

Total income				$309,545
	Program expenses			$188,482
	Fund raising expenses			29,204
	Administrative expenses			28,414
Total expenses				$246,100
Income in Excess of Expenses				63,445
Beginning net assets				9,372
Ending net assets				72,817
Total liabilities				6,573
Total assets				$79,390