Better Business Bureau Report for
Epilepsy Foundation of Kentuckiana, Inc.

Better Business Bureau Report issued October 2012
Better Business Bureau Report expires October 2014


This BBB Accredited charity meets all 20 Standards for Charity Accountability and is a Seal Holder. Find out more...


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Charity Contact Information

Name: Epilepsy Foundation of Kentuckiana, Inc.
Address: Kosair Charities Centre, 982 Eastern Parkway
  Louisville, KY 40217
Phone: 502-637-4440
Web Address: www.efky.org
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Better Business Bureau Comments

Year, State Incorporated: 1996, Kentucky
Affiliates: None
Stated Purpose: The Epilepsy Foundation of Kentuckiana leads the fight to stop seizures, find a cure and overcome challenges created by epilepsy.

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Evaluation Conclusions

              

Epilepsy Foundation of Kentuckiana, Inc. meets the 20 Standards for Charity Accountability.
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Programs

              

The Epilepsy Foundation of Kentuckiana's services and programs include the following: Advocacy--The Epilepsy Foundation of Kentuckiana advocates for individuals with epilepsy in many different capacities. At a local level, the Foundation fights for the rights of people who have been discriminated against in housing, employment, the receipt of appropriate services and treatment, and in education. At state and national levels, the Foundation encourages legislators to increase funding for research and services that improve the quality of life for individuals with epilepsy. Educational Programs and In-service Training--The Foundation provides training for school personnel, the medical community, and the business community to teach people how to correctly respond to seizures. These in-service trainings are also designed to provide people with a basic understanding of epilepsy. Public Education--The Foundation is active in the community providing information to the general public by distributing literature and providing information at health and community fairs. H.O.P.E. Presentations (Helping Other People with Epilepsy)--HOPE presentations are designed to address a variety of topics relating to epilepsy and are easily modified for presentations at civic clubs, in school classrooms, or at staff meetings. Support Services--From phone trees to meetings, the Epilepsy Foundation of Kentuckiana has support services to meet the community's needs. Support is available for people with epilepsy, their loved ones, and the people who care for them. The Epilepsy Foundation of Kentuckiana offers a phone tree, e-mail network, group meetings, social events, and educational seminars for both adults and teens. Information and Referral--Information is available on all topics related to epilepsy. The Foundation provides information for the general public, newly diagnosed people with epilepsy and their families, and health care professionals. The Foundation also provides referrals to doctors and related service providers. A quarterly newsletter, The Illuminator, is available for anyone who wants to keep up on epilepsy related issues and the Foundation's services. Financial Assistance--The Epilepsy Foundation of Kentuckiana can provide financial support to individuals with epilepsy and their families. In extreme cases, where all resources have been exhausted, the Foundation can provide assistance with the costs of medications, treatment, or other special and necessary needs. The Foundation also sponsors two annual scholarships - Shannon O' Daniel Memorial Scholarship for college bound high school seniors and Peggy Sherrell Memorial Scholarship for an adult student, and also pays for a number of enrollment fees so that children with epilepsy can enjoy a special camp designed just for them. Operation Outreach is a program specific to OEF/OIF combat veterans with a traumatic brain injury at risk of developing epilepsy or is affected by this neurological condition, and their families, to assist them in getting connected to an array of support services.

For the fiscal year ended December 31, 2011, Epilepsy Foundation of Kentuckiana, Inc.'s program expenses were:

  
Client Assistance 83,500
Public Education 63,290
Professional Education 51,617
Community Services 27,864
Total Program Expenses: $226,271
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Governance

              

Chief Executive : Debra Jo McGrath, Executive Director
Compensation*: 
$65,321

Chair of the Board: Jeff Davis
Chair's Profession / Business Affiliation: President, Electronic Verification Systems, Inc.

Board Size: 14

Paid Staff Size: 3

*Compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

              

Method(s) Used:

Methods of fund raising include direct mail, invitations to fund raising events, print advertisements, television, radio, grant proposals, internet, and cause-related marketing.
Fund raising costs were 20% of related contributions. (Related contributions, which totaled $120,898, are donations received as a result of fund raising activities.)
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Tax Status

              

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

              

The following information is based on Epilepsy Foundation of Kentuckiana, Inc.'s audited financial statements for the fiscal year ended December 31, 2011.

Ending net assets as reported below include $50,812 in unrestricted net assets and $25,000 in temporarily restricted net assets.

Source of Funds  
Contributions & Grants 184,030
Special Events 162,592
Other 286
Special Events direct expenses -41,694
Total Income $305,214


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Uses of Funds as a % of Total Expenses

Programs: 81%  Fund Raising: 9%  Administrative: 10% 

Total income $305,214
Program expenses $226,271
Fund raising expenses 24,286
Administrative expenses 27,171
Total expenses $277,728
Income in Excess of Expenses 27,486
Beginning net assets 48,326
Ending net assets 75,812
Total liabilities 9,859
Total assets $85,671


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