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Tax Status Governance Fund Raising Financial

Name:	The LAM Foundation
Address:	4015 Executive Park Drive, Suite 320
	Cincinnati, OH 45241
Phone:	(513) 777-6889
Web Address:	http://thelamfoundation.org

The LAM Foundation meets the 20Standards for Charity Accountability.

The LAM Foundation provides funding for LAM research, including 79 research projects in the past 12 years leading to three scientific breakthroughs and the first LAM treatment trial, as well as the discovery of the genetic basis of LAM, its relationship to tuberous sclerosis, and the identity of molecular targets for therapy. The organization initiated the development of a patient database that has now identified over 2,000 women with LAM worldwide. The foundation also devised a system to acquire and distribute patient tissue obtained at lung transplantation for LAM research. The LAM Foundation provides LAM education resources, including LAMposium, a forum for scientific discussion of LAM that, according to the organization, regularly attracts over 300 conference attendees, including an average of 100 researchers/investigators. The LAM Foundation has organized and executed nine annual International LAM Research Conferences. The organization delivers presentations and manages exhibits to educate the medical community about LAM at leading medical conferences, including the International American Thoracic Society Conferences, the American College of Chest Physicians, European Respiratory Society, Tuberous Sclerosis Alliance, American Lung Association "Catch Your Breath" conferences, and the Canadian Lung Conference. The organization has also developed a plan to educate pulmonologists, nephrologists, gynecologists, internists, neurologists, and ER physicians to help them identify women with LAM and to acquire LAM patient referrals. The LAM Foundation supports efforts to raise awareness of LAM through the Internet, radio, TV, and print. These efforts have included testifying before Congress on behalf of rare diseases, speaking at the United Nations about LAM, and sponsoring the "Tour for a Cure", a 13,000-mile trip around the United States to raise LAM awareness. The LAM Foundation provides a support network for LAM patients through telephone calls, emails, a patient newsletter, an Advocacy Program, and a LAM patient ListServ and Community Forum. The organization has assisted in the founding of 11 other patient organizations around the world, three of which, according to the organization, are raising funds for the U.S. LAM Foundation. In addition, the LAM Foundation formed the Worldwide LAM Patient Coalition to enable collaboration with 15 different patient organizations to facilitate research.

For the fiscal year ended December 31, 2009, The LAM Foundation's program expenses were:

Research	607,345
Patient Services	139,898
Public Education	51,875
Professional Education & Training	19,964
Total Program Expenses:	$819,082

Chief Executive : Ms. Jill Raleigh, Executive Director

Compensation*:

Chair of the Board: Mr. Tom Laurenzi
Chair's Profession / Business Affiliation: President, Delmhorst Instrument Company

Board Size: 12

Paid Staff Size: 7

*Compensation information not provided to your BBB.

Method(s) Used:

direct mail, Internet, Sponorship

Fundraising costs were 10% of related contributions. (Related contributions, which totaled $929,435, are donations received as a result of fundraising activities.)

This charity is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on The LAM Foundation's audited financial statements for the fiscal year ended December 31, 2009.

Source of Funds
Honor and Memorial Tributes	317,144
Contributions from Special Events, Net	288,526
Corporate and Foundation Gifts	175,646
Conference Sponorships and Registrations	94,524
Investment Earnings (Losses), Net	90,548
Other Donations	79,564
Contributed Services and Materials	68,555
Other Income	260
Total Income	$1,114,767

Uses of Funds as a % of Total Expenses

Programs: 78%  Fund Raising: 8%  Administrative: 14%

Total income				$1,114,767
	Program expenses			$819,082
	Fund raising expenses			89,216
	Administrative expenses			144,624
Total expenses				$1,052,922
Income in Excess of Expenses				61,845
Beginning net assets				923,683
Ending net assets				985,528
Total liabilities				154,222
Total assets				$1,139,750