Standard 3: Frequency and Attendance of Board Meetings - An organization shall have a minimum of three evenly spaced meetings per year of the full governing body with a majority in attendance, with face-to-face participation. A conference call of the full board can substitute for one of the three meetings of the governing body. For all meetings, alternative modes of participation are acceptable for those with physical disabilities.
Families of Spinal Muscular Atrophy does not meet this Standard because:
- The board of directors did not hold a minimum of three evenly spaced meetings in the past fiscal year.
Standard 6: Board Policy on Effectiveness - Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.
Families of Spinal Muscular Atrophy does not meet this Standard because:
- Its effectiveness assessment policy does not specify that this assessment will take place at least once every two years.
Standard 7: Board Approval of Written Report on Effectiveness - Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.
Families of Spinal Muscular Atrophy does not meet this Standard because:
- It did not produce a written report outlining the results of its most recent effectiveness assessment.
Standard 17: Web Site Disclosures - Include on any charity websites that solicit contributions, the same information that is recommended for annual reports, as well as the mailing address of the charity and electronic access to its most recent IRS Form 990.
Families of Spinal Muscular Atrophy does not meet this Standard because the organization's website, www.curesma.org, does not include all of the recommended information for those charity websites that solicit for donations. Specifically, it does not include: