Better Business Bureau Report for
Angelman Syndrome Foundation, Inc.

Better Business Bureau Report issued November 2014
Better Business Bureau Report expires November 2016

Does not meet one or more standards
This charity does not meet one or more of the 20 standards for Charity Accountability. Find out more...

Find out more about this charity:

Back To Top

Charity Contact Information

Name: Angelman Syndrome Foundation, Inc.
Address: 11 Breckenridge Drive
  Aurora, IL 60504
Phone: 630-978-4245
Web Address:
Back To Top

Better Business Bureau Comments

Year, State Incorporated: 1992, Florida
Affiliates: None
Stated Purpose: The Angelman Syndrome Foundation is a national 501(c)(3) organization of families, caregivers and medical professionals who care about those with Angelman Syndrome. Their mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, advocacy and support for individuals with Angelman Syndrome, their families, and other concerned parties.

Back To Top

Evaluation Conclusions


Angelman Syndrome Foundation, Inc. does not meet the following Standard for Charity Accountability.

Standard 16: Annual Report - Have an annual report available to all, on request, that includes: (a) the organization's mission statement, (b) a summary of the past year's program service accomplishments, (c) a roster of the officers and members of the board of directors, (d) financial information that includes (i) total income in the past fiscal year, (ii) expenses in the same program, fund raising and administrative categories as in the financial statements, and (iii) ending net assets.

In addition, the BBB of Chicago & Northern Illinois requested but did not receive complete information on the organization’s governance and oversight, effectiveness measures, finances, solicitation materials, and fundraising disclosures and is unable to verify the organization's compliance with the following 8Standards for Charity Accountability: 1, 3, 5, 6, 7, 14, 15, and 19.
Angelman Syndrome Foundation, Inc. meets the remaining 11 Standards for Charity Accountability.
Back To Top



ASF is a national 501(c)(3) organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman Syndrome as possible. The ASF sponsors a biennial conference which gives you the opportunity to hear the latest research results, therapeutic techniques, educational strategies, long-term planning and financial planning information. Their conference also offers many networking opportunities to talk to familiies that are dealing with the same issues you might be having while caring for an individual with Angelman Syndrome.

For the fiscal year ended September 30, 2013, Angelman Syndrome Foundation, Inc.Angelman Syndrome Foundation, Inc. 's program expenses were:

Research 807,316
Family Support 311,747
Biennial Conference and Symposium 244,795
Total Program Expenses: $1,363,858
Back To Top



Chief Executive :

Chair of the Board:
Chair's Profession / Business Affiliation:

Board Size:

Paid Staff Size:

*Compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Back To Top

Fund Raising


Method(s) Used:

Fund raising costs were 30% of related contributions. (Related contributions, which totaled $1,096,579, are donations received as a result of fund raising activities.)
Back To Top

Tax Status


This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
Back To Top



The following information is based on Angelman Syndrome Foundation, Inc.'s audited financial statements for the fiscal year ended September 30, 2013.

Source of Funds  
Special events, net of related expenses 949,579
Contributions 601,399
Donated professional services 147,000
Biennial conference 55,009
Net investment return 52,631
Other income 1,732
Repayment of grant funds
Loss on disposal of fixed assets
Net assets released from restrictions-satisfaction of program restrictions
Membership dues
Inventory sales, less cost of goods sold of $68 for 2012
Total Income $1,807,350


Uses of Funds as a % of Total Expenses

Programs: 74%  Fund Raising: 18%  Administrative: 8% 

Total income $1,807,350
Program expenses $1,363,858
Fund raising expenses 333,642
Administrative expenses 149,562
Total expenses $1,847,062
Expenses in Excess of Income (39,712)
Beginning net assets 0
Ending net assets 1,211,141
Total liabilities 0
Total assets $0

Back To Top

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

Send to:

What is an Accredited Charity