Better Business Bureau Report for
Angelman Syndrome Foundation, Inc.

Better Business Bureau Report issued March 2012
Better Business Bureau Report expires March 2014


Does not meet one or more standards
This charity does not meet one or more of the 20 standards for Charity Accountability. Find out more...


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Charity Contact Information

Name: Angelman Syndrome Foundation, Inc.
Address: 11 Breckenridge Drive
  Aurora, IL 60504
Phone: 630-978-4245
800-432-6435
Web Address: www.angelman.org
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Better Business Bureau Comments

Year, State Incorporated: 1992, Florida
Affiliates: None
Stated Purpose: The Angelman Syndrome Foundation is a national 501(c)(3) organization of families, caregivers and medical professionals who care about those with Angelman Syndrome. Our mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, advocacy and support for individuals with Angelman Syndrome, their families, and other concerned parties.

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Evaluation Conclusions

              

Angelman Syndrome Foundation, Inc. does not meet the following 3 Standards for Charity Accountability.

Standard 6: Board Policy on Effectiveness - Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.

Standard 7: Board Approval of Written Report on Effectiveness - Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.

Angelman Syndrome Foundation, Inc. does not meet this Standard because:

  • It has never completed an effectiveness assessment.

Standard 16: Annual Report - Have an annual report available to all, on request, that includes: (a) the organization's mission statement, (b) a summary of the past year's program service accomplishments, (c) a roster of the officers and members of the board of directors, (d) financial information that includes (i) total income in the past fiscal year, (ii) expenses in the same program, fund raising and administrative categories as in the financial statements, and (iii) ending net assets.

Angelman Syndrome Foundation, Inc. does not meet this standard because:

  • The organization states it does not have an annual report covering activities conducted in the past year.
In addition, the BBB of Chicago & Northern Illinois requested but did not receive complete information on the organization’s governance and oversight and is unable to verify the organization's compliance with the following Standard for Charity Accountability: 3.
Angelman Syndrome Foundation, Inc. meets the remaining 16 Standards for Charity Accountability.
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Programs

              

ASF is a national 501(c)(3) organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman Syndrome as possible. The ASF sponsors a biennial conference which gives you the opportunity to hear the latest research results, therapeutic techniques, educational strategies, long-term planning and financial planning information. The conference also offers many networking opportunities to talk to familiies that are dealing with the same issues you might be having while caring for an individual with Angelman Syndrome.

For the fiscal year ended September 30, 2011, Angelman Syndrome Foundation, Inc.Angelman Syndrome Foundation, Inc. 's program expenses were:

  
Program Services 1,172,174
Total Program Expenses: $1,172,174
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Governance

              

Chief Executive : Eileen Braun, Executive Director
Compensation*: 
$93,600

Chair of the Board: ASF Board of Directors
Chair's Profession / Business Affiliation: Timothy McCarty-President - Deloitte & Touche LLP

Board Size: 12

Paid Staff Size: 7

*Compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

              

Method(s) Used:

direct mail, grant proposals, internet
Fund raising costs were 22% of related contributions. (Related contributions, which totaled $1,428,559, are donations received as a result of fund raising activities.)
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Tax Status

              

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

              

The following information is based on Angelman Syndrome Foundation, Inc.Angelman Syndrome Foundation, Inc.Angelman Syndrome Foundation, Inc.Angelman Syndrome Foundation, Inc.Angelman Syndrome Foundation, Inc.Angelman Syndrome Foundation, Inc. 's audited financial statements for the fiscal year ended September 30, 2011.

Source of Funds  
Special Events 898,470
Contributions 530,089
Beinnial Conference 78,853
Membership dues 20,293
Other Income 6,253
Net investment return 6,251
Repayment of grant funds 5,359
Inventory Sales 1,420
Total Income $1,546,988


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Uses of Funds as a % of Total Expenses

Programs: 71%  Fund Raising: 19%  Administrative: 10% 

Total income $1,546,988
Program expenses $1,172,174
Fund raising expenses 315,584
Administrative expenses 168,903
Total expenses $1,656,661
Expenses in Excess of Income (109,673)
Beginning net assets 1,223,330
Ending net assets 1,113,657
Total liabilities 839,791
Total assets $1,953,448


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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

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