Better Business Bureau Report for
Propionic Acidemia Foundation

Better Business Bureau Report issued November 2012
Better Business Bureau Report expires November 2014


Does not meet one or more standards
This charity does not meet one or more of the 20 standards for Charity Accountability. Find out more...


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Charity Contact Information

Name: Propionic Acidemia Foundation
Address: 1963 McCraren
  Highland Park, IL 60035
Phone: 877-720-2192
Web Address: www.pafoundation.com
Also known as:PA Foundation
PAF
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Better Business Bureau Comments

Year, State Incorporated: 2002, Illinois
Affiliates: None
Stated Purpose: The Propionic Acidemia Foundation is a non-profit organization dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals

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Evaluation Conclusions

               

Propionic Acidemia Foundation does not meet the following Standard for Charity Accountability.

Standard 2: Number of Board Members - Soliciting organizations shall have a board of directors with a minimum of five voting members.

Propionic Acidemia Foundation does not meet this Standard because:

  • The organization has FOUR (4) voting members of the board.
Propionic Acidemia Foundation meets the remaining 19 Standards for Charity Accountability.
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Programs

               

The Propionic Acidemia Foundation aids in: Providing research grants, providing information and support, and attend and exhibit at conferences. The organization's website links to Parent Guides, nutritional information, research publications, and state resources. Other program efforts are: -Newsletters are sent out twice a year -Annual PA Family Day give families an opportunity to spend time with other families that are affected by PA in a warm, casual environment. -Online Email Discussion List gives families a chance to ask questions, give updates, and get support. -Care Notebook for families that can be downloaded -Toll free phone number (US)

For the fiscal year ended July 31, 2012, Propionic Acidemia Foundation's program expenses were:

  
Grants and patient registryn the U.S. 106,500
Travel 1,286
conferences, conventions, and meetings 907
Printing-newsletter 784
Office Expenses 570
Printing 425
Total Program Expenses: $110,472
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Governance

               

Chief Executive :
Compensation*: 
 $

Chair of the Board: Jill Chertow Franks
Chair's Profession / Business Affiliation: none

Board Size: 4

Paid Staff Size: 0

*Compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

               

Method(s) Used:

direct mail, internet, membership, indivdual family events
Fund raising costs were 2% of related contributions. (Related contributions, which totaled $121,061, are donations received as a result of fund raising activities.)
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Tax Status

               

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

               

The following information is based on Propionic Acidemia Foundation's IRS Form 990 for the fiscal year ended July 31, 2012.

Source of Funds  
Contributions and grants 121,061
Investment income 213
Total Income $121,274


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Uses of Funds as a % of Total Expenses

Programs: 97%  Fund Raising: 2%  Administrative: 1% 

Total income $121,274
Program expenses $110,472
Fund raising expenses 2,419
Administrative expenses 1,258
Total expenses $114,149
Income in Excess of Expenses 7,125
Beginning net assets 126,726
Ending net assets 133,851
Total liabilities
Total assets $133,851


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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

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